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Maya2001 -> RE: Problems because of syndromes, diseases etc.? (2/17/2009 10:45:43 PM)
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ORIGINAL: GeekyGirl
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ORIGINAL: LuckyAlbatross
Everyone has something that makes it harder I think- whether it's a 2 year old or a broken down jeep, or mood disorder.
The difference is that you don't choose to have a syndrome and you can't usually "fix" it.
Having a 2yr old is a choice...you don't get a right to whine about it affecting your life.
If your jeep is broke down, fix it. Again, no reason to whine.
Those of us with syndromes/disorders didn't choose them and depending the problem may not be able to fix it, so comparing to another person's poor decision to reproduce or not fix their jeep doesn't really equate.
A divorce leaving you a single parent and not recieving support is not a choice
having a birth control fail is not a choice
A vehicle breaking down may not be a big deal to you but the parent struggling to make ends meet and needing the car to get to work is more than just an inconvenience ..it can become a life altering episode
..as the saying goes "you may have to walk in another moccasin's" I have been there and I also have had injuries and illnesses that have effected my life in a major way ...so yes LA is very much correct in what she said
I have fibro , ruptured the bursa in my right hip, injured my upper spine which required several years of therapy
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Seriously, the issue is really that people's tolerance to adversity depends on what they are used to. When the level of crap in life increases, it either kills you, or it recalibrates your scale. Most people tend to assume their scale is universally applicable, whether they are aspies or NTs or something else. It rarely is.
Aswad's comment above is very much true, and it helped me push the boundaries of some issues and work thru the pain to become functional again
I also have supraventricular tachycardia, hypertrophic osteoarthropathy, lung cancer, TMJ
the first condition is under control now with drugs ..it took a few med trials and dosages changes to get under control, should it become a problem again surgery may be needed to fix the electrical impulse paths around the heart
the hypertrophic is the most dibilitating at this point, as my bones are going through a lot of changes which is extremely painful, makes it very difficult to walk around and really wears me out, I have tried a couple meds though had to go back to the one that is harder on the stomach to get some relief and taking the maximum dosage ..so for now all I can do is bare with
this coming tuesday I get the results of all the testing and possibly my surgery for the cancer, even if i do prove lucky to be early stage 1b I am still in for one very rough battle for the next year, because of tumor location they are going to remove the right lung and once I recover enough for that I start chemo and that will likely be 6 to 9 months of heavy duty drugs to try and prevent it from mestasizing else where...the one benefit is the surgery will also stop the hypertrophic and the bones, finger clubbing and skin changes that have occurred will start reversing and the pain will subside, I know that drugs they use hair loss is very common so I already got my hats bought and already practicing joking around about it as I know surviving is more important than my hair and that eventually my hair will come back
this is my second battle with cancer, the first was 26 years ago and I know that was a walk in the park compared to what I am facing this time round
as for impact or problems it is causing ....the kink part of my live is on hold for a year maybe longer other than checking in here at cm and fetlife when i am up to it, my priority and focus has to be on getting myself well again and avoid to much outside stresses that could affect my emotional health while I go thru the worst of it(surgery and chemo) I know I am going to have my bad days and accept that, but I also know with out all the past stuff I faced in past and overcame that means not just the physical but dealing with financials problems, a child on my own who challenged the heck out of me and forced me to dish out some heavy handed tough love... that all it is going to be of assistance to help me get thru this and will allow me to make the tough decisions that I have to regarding treatment and care as well as make preparations for the worst possible outcome, also to have the strength to help my family through this because they are having an emotionally hard time, especially my mom
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