Twicehappy2x
Posts: 1096
Joined: 3/27/2007 Status: offline
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quote:
ORIGINAL: realisticwish Twicehappy, bless your heart. I have RA and I have to cancel sometimes on play dates. I just tell people that on my good days I am great and on my bad days I am not quite so great. I have had to back off of some types of play and even simple activities like cuddling at Scooter's feet more often than i care to think about. I am lucky though, Scooter has no problem lifting me off the floor if i have snuggled up with my head in his lap and my knees got stuck. The most difficult thing about RA is getting folks to understand "yeah i know yesterday i carried 50 lb bags of mulch and rode for 2 hours but today i need to use a plastic coffee cup because the glass one is too heavy". And the sometimes constant state of exhaustion, those days when breathing is enough to wear you out. My greatest problem here was Scooter's insistence that the doctors could do something for me. That and thinking if i took the pain meds i was all better because i was functioning without saying ow or tearing up. Every time he would say they have to be able to do something i would just want to cry. I have had this since i was 17, i cannot use the immune system controlling drugs due to a massive infection i had while on them. That pretty much leaves me stuck with the old baddies, steroids, anti inflammatory, and dope. Finally i just sat him down and told him, no, they cannot. Why would i live with this if they could. Then he did some research of his own and he finally understands. He is so very good about the bad days. The days i stay in bed or the days i take the pain drugs (not often, i HATE the damn things) and am relatively stupid then. It is just incomprehensible to some folks that in this day and age of miracle medicine they still have no cure for this. The secret i have found is to never ever let it stop you. I ride, i race, i garden, i wrench, i work on the house. Some days i can accomplish anything, others i have to pick and chose what is most important to get done that day.
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The human heart is not a finite container but an ever expanding universe with all the stars contained there in.
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