expedio1
Posts: 30
Joined: 4/1/2007 From: Texas Status: offline
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Wow, what a great thread. It's good for those of us who have these difficulties -- so difficult to describe or explain to others -- to find each other and lend moral support, if not advice or information. I don't have sleep paralysis; I'm at the opposite end of the spectrum. I have a condition called wakefulness disorder in which (to put it in very simple terms) My brain has difficulty knowing whether it's awake or asleep, so My body in turn doesn't always behave appropriately to the state it's in. The disorder has many possible symptoms, but the three most common ones by far are bedwetting to an unusually advanced age, night terrors, and severe sleepwalking/talking/etc. I've had all three, along with an array of less spectacular issues, like frequent (often recurring) nightmares and insomnia. I finally grew out of the bedwetting at the horrifying age of 15 (others in My extended family had similar problems, most notably My maternal grandfather, who finally stopped at 21) and it's been something like 10 years (thank goodness!) since I've had a night terror episode, but I still very much battle the frequent sleep activity, nightmares, and other issues. The main reasons I wanted to respond on this thread are: (1) To let My voice be known, let others know that they're not alone, and to say that I'm happy to talk privately about this with anyone who's interested. I'm a science type, and I've done a fair bit of research on sleep and wakefulness disorders, so I can talk pretty knowledgeably about lots of things. That's not to say that I think I can teach anyone anything; only that you're unlikely to have to explain something for the thousandth time and you won't have to convince Me that you're not crazy. I know that it's real, and I know that it's difficult to describe. And sometimes it's good just to talk about things. (2) To say that a couple of you... certainly chellekitty... sound like you might possibly have a condition that's at least similar to what I have, and if you're either under medical care or considering it, you might want to mention it to your doctor. Unfortunately, full blown cases of wakefulness disorder are not common so you may need a specialist in order to get someone who knows enough about it to help you, but information never hurts so I wanted to get the name of it out there just in case it might help someone. And (3) To say definitively that, as a few of you have guessed, this category of sleep disorders (those that are related to the barrier between sleep and wakefulness, which includes sleep paralysis and almost everything else that's been mentioned) absolutely has a genetic component. In some variations the link to heredity is stronger than it is in other variations... in My own case, it's very clearly genetic, with several of My relatives being affected... but as far as I can tell it's almost always there. Thank you, velvetears, for having the courage and the creativity to start this thread. I can only hope that My small contribution to it can benefit someone even a fraction as much as your and everyone else's posts have benefitted Me.
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