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RE: Chemo - 12/26/2007 8:42:49 PM   
spanklette


Posts: 882
Joined: 2/22/2005
Status: offline 		I don't have much to add as far as the medical stuff...every person is different, even when they have the same disease. But, don't forget to take care of you during his treatment. Take a break if you need one...this was one of the hardest things for us to do when my father was ill, but it was also the most sorely needed. Small things that relieve stress for you will make a huge impact on how positive you're able to stay.
 
You're both in my prayers.

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~spanklette~

"The important thing is this: to be able at any moment to sacrifice what we are for what we could become. " Charles du Bois

"Please don't shout, can't you see I'm not listening." Billie Myers

(in reply to Aileen1968)
Profile   Post #: 41
RE: Chemo - 12/26/2007 10:42:55 PM   
dovie


Posts: 1211
Status: offline 		sending positive thoughts and warm healing light for both of you. believe and know that all is well!

dovie

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(in reply to Aileen1968)
Profile   Post #: 42
RE: Chemo - 12/27/2007 4:17:55 AM   
mefisto69


Posts: 370
Joined: 1/19/2007
Status: offline 		ooops - sorry Aillen..... i should have written "red blood cells". Do Not be shy about getting family and friends to help out too. You propbably won't realize the toll the stress of this will take on you too.

(in reply to AquaticSub)
Profile   Post #: 43
RE: Chemo - 12/27/2007 4:24:30 AM   
SeeksOnlyOne


Posts: 2012
Joined: 5/14/2007
Status: offline 		and dont forget laughter! in so many ways it is the best medicine.....rent old bugs bunny cartoons or comedy movies, whatever makes him laugh......and you need to laugh also....

laughter is really really good medicine

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RE: Chemo - 12/27/2007 8:10:35 AM   
samboct


Posts: 1817
Joined: 1/17/2007
Status: offline 		Mefisto

I think you had it right the first time- the white blood cell count is what drops during chemotherapy since often the drugs suppress the immune system.  There are now some treatments which boost the white blood cell count before beginning chemo-which is what I referred to in my first post as a prophylactic measure.  Red blood cells are pretty hard to kill off- they're a lot smaller and simpler than white blood cells.  Whether or not this prophylactic measure is helpful probably depends in large part of the specifics of the particular cancer (Termynator is right by the way- cancer is a catch all phrase that covers a large family of diseases- even some diseases such as breast cancer which can present similarly can have different mechanisms.) so I'd ask your doc about these treatments.


Aileen-

In terms of dealing with docs- having a written list of questions that shows that you've done your homework isn't a bad idea.  While the old idea of a doc- "just trust me" still has its adherents, a number of docs these days are happier when their patients show up well educated about their particular illness.   Try not to be confrontational- your doc has a tough job- working together is great- but nobody likes to be second guessed. 

One thing to keep in mind- the medical community has a lot of issues dealing with herbal remedies, supplements etc.  It can often be frustrating for a doc when a patient prefers a homeopathic remedy to a pharmaceutical compound.  At the risk of thread hijack- the first problem in evaluating herbal remedies is actually figuring out what they are- quality control in the dietary supplement industry is a sick joke- and there's a lot of variation when you look at things like "ginko", not only between manufacturers of the stuff, but also between batches sold by the same mfg.  The compound sold by the pharma company has a pretty good track record of being what it says it is- it takes one variable out of the equation.

HTH

Sam

(in reply to SeeksOnlyOne)
Profile   Post #: 45
RE: Chemo - 12/27/2007 9:36:46 AM   
Aileen1968


Posts: 6062
Joined: 12/12/2007
From: I miss Shore, New Jersey
Status: offline 		You've all written some lovely things to me here and in private email.  Thanks for that.  Just to clarify some things.  He isn't supplementing with any kind of alternative medicine since he started chemo.  We discussed and agreed that we didn't want to take any chance with counteracting the chemo.  Once he realized that he was going the chemo route then he decided that he needed to go full force with it.  Only time will tell if that's the right decision.  What he is doing is being proactive with keeping himself as healthy and strong as he can through his food choices...organic, easily digestible, etc.   He doesn't drink soda or things like that and can't stand anything manmade...highly processed and fast food type.  He's sticking with lots of veggies, fresh juices, organic chicken and such.  We're keeping it simple.  He does plan on completely detoxing his body after he's done with chemo. 

Also...he goes and gets bloodwork done about a week after his chemo to check white blood count and has been told that if it's low they will give him an injection to boost it.  I'm assuming that's what you're talking about mefisto.

We're also doing a lot of laughing and enjoying all of the people in our life.  We're looking into meditation, yoga and massage to stay calm and focused.

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RE: Chemo - 12/27/2007 9:40:59 AM   
masterrich175


Posts: 19
Status: offline 		"We're also doing a lot of laughing and enjoying all of the people in our life."

How beautiful!  He sounds like a lucky man to have you right by his side.  Wishing you well.

(in reply to Aileen1968)
Profile   Post #: 47
RE: Chemo - 12/27/2007 9:48:05 AM   
Aileen1968


Posts: 6062
Joined: 12/12/2007
From: I miss Shore, New Jersey
Status: offline
quote:

ORIGINAL: masterrich175

"We're also doing a lot of laughing and enjoying all of the people in our life."

How beautiful!  He sounds like a lucky man to have you right by his side.  Wishing you well.


Thank you, but I'm not doing anything that anyone else wouldn't do for someone they love.

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RE: Chemo - 12/27/2007 10:25:45 AM   
RCdc


Posts: 8674
Status: offline 		Aileen
I only just seen this post and back after the 'break' and I haven't really much to add to what others have said, other than sending you both love and good thoughts.  You may see it right now, but you are a great role model posting this.
Laughter does rock as a great healer.  And meditation is a fantastic 'centre' (if that makes sense).  I would really recommend using music as a theraputic tool as well.
 
Be safe
the.dark.

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love isnt gazing into each others eyes - it's looking forward in the same direction

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Profile   Post #: 49
RE: Chemo - 12/27/2007 1:41:30 PM   
NakedOnMyChain


Posts: 2431
Joined: 11/29/2004
From: Indiana
Status: offline 		I'm so sorry, Aileen.  I'll be sending prayers and positive energy your way.

I don't know a ton about it, but my husband and my best friends are a couple, and the male in the couple has had Non-Hodgkins lymphoma for about ten years now.  He's only 33.  He's been in and out of chemo many times for different tumors they've found.  It has been in remission for over a year now, and he's doing really well.  They've made some awesome breakthroughs in chemo and cancer treatment.  The survival rate for those who find it quickly and respond with chemo and alternative methods is quite high.  It's a rough treatment, but it really is the best way.  The odds are good for a full recovery.

Blessings and love to you and yours.

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"Oh, it's torture, but I'm almost there."
~The Cure

"I ask for so little. Just fear me, love me, do as I say, and I will be your slave."
~The Labyrinth

(in reply to Aileen1968)
Profile   Post #: 50
RE: Chemo - 12/27/2007 2:02:53 PM   
romanticukmale1


Posts: 2
Joined: 7/19/2007
Status: offline 		Hi my thoughts are with you
as a fellow suffer i was diagnosed of having aggressive form of Non-Hodgkin’s lymphoma i had a large lump come up in my armpit 2 years ago i had it removed and then had a ct scan and they found a load more lumps
with me all i had was radiation on a few lumps on my face
then it subsided ! because i started to take vitamins and selenium + immunace ( it boosts your immune system) ok i’m may not be sure it has made a difference but i have been lump free for 6 month i have blood tests every 2 months and my consultant is very pleased
If you want anymore info feel free to contact me
don’t worry your man will be ok because he has you by his side

(in reply to Aileen1968)
Profile   Post #: 51
RE: Chemo - 12/27/2007 5:02:14 PM   
windchymes


Posts: 9410
Joined: 4/18/2005
Status: offline 		Heck, if having you for a wife isn't incentive enough to get better.....

Today's chemo drugs are really powerful and cure rates are much higher than they used to be, as are the medications they give for follow-up, anti-nausea, Neupogen for the white cells, yes, and I think they even have a drug that minimizes hair loss.

You'll both be in my thoughts...I'll be watching for progress updates here.

Take care.

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Profile   Post #: 52
RE: Chemo - 12/27/2007 6:52:43 PM   
dcnovice


Posts: 37282
Joined: 8/2/2006
Status: offline 		Aileen ---

You're both in my thoughts and prayers.

I don't have any chemo-survival wisdom to impart but had a few general thoughts for coping with crisis:

(a) Give yourself permission to be human. There will inevitably be moments you won't handle as well as you'd like, and now and then your man may indeed notice that you're not Florence Nightingale. That doesn't mean you're not loving and strong; it's means you're a human doing her best in an impossible situation.

(b) Let people help. The folks who love you will ache to assist you, but they may have no idea how. Giving folks specific tasks (a grocery run, a babysitting stint, you get the idea) will make getting real help more likely.

(c) Befriend a local domme and get her to order her subs to do your housework, so you don't have that on your plate too.

Warmest wishes,

DC

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it's never enough to keep up.

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INTELLIGENT LIFE IN THE UNIVERSE

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RE: Chemo - 12/27/2007 10:00:20 PM   
dawntreader


Posts: 3045
Joined: 11/23/2006
Status: offline
quote:

ORIGINAL: Aileen1968

We're also doing a lot of laughing and enjoying all of the people in our life.  We're looking into meditation, yoga and massage to stay calm and focused.


Excellent!
i send you both light and love
j

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There is a war going on for your mind...if you are thinking, you are winning~
Flobots

(in reply to Aileen1968)
Profile   Post #: 54
RE: Chemo - 12/27/2007 11:31:49 PM   
Termyn8or


Posts: 18681
Joined: 11/12/2005
Status: offline 		Aileen, that's what I said.

Don't go nuts on any supplements right now. But a change of diet would be great. There may be a list of foods he shouldn't eat, so stick to that, but a general change could be very good.

Cutting out the bad things and bringing in more good things would be nice. The whole idea of this treatment is to make his body less attractive to this disease. Actually more than that. It is going to take it's toll, and a better diet is very helpful.

I am willing to do a little research (probably most of it on my own computer) but like I said I need the diet for one week. After I see that then I know what to go find out. I also have plenty of general dietary recommendations, but unless and until someone expresses some interest in the connection between diet and health, I seriously have no  idea what to tell you.

Here's a hoot for ya, maybe lighten up a bit. I seen this ad, and I am just, dunno about it. "I beat cancer three times" using this miracle cure of course. Which he is selling by the way.

Now come on, if you have to beat cancer three times, that means you did not really beat it in the first place. What a joke. It was just in remission.

But in the end, realize that something caused this. Get into remission, by all means, but make the changes that make the difference. That is how you beat shit like this. Absolutely, and that is a conclusion.

T

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Profile   Post #: 55
RE: Chemo - 12/28/2007 9:06:34 PM   
Lordandmaster


Posts: 10943
Joined: 6/22/2004
Status: offline 		I'm very sorry to hear it, Aileen.  Best of luck.  A friend of mine is going through chemo right now for leukemia and he's not happy.  But his prognosis is good.

(in reply to Aileen1968)
Profile   Post #: 56
RE: Chemo - 12/29/2007 8:09:34 AM   
jbscat666


Posts: 3
Joined: 8/7/2006
From: Monterey, California
Status: offline 		I went through three months of chemo and radiation two years ago.  My doctors scared the hell out of me with the lengthy lists of possible side effects.  Going into it I was sure I was a dead man because if the cancer didn't kill me surely the treatment would.  My experience was that the whole ordeal was nowhere near as intolerable as I imagined it would be, which is not to say it's a walk in the park either.  Keeping a journal and writing down questions for the doctors as you think of them will help to keep you both focused on the here and now rather than all the negative possibilities.  Believe it or not, in most cases your glass is half full.  Many people survive cancer today and go on to live their lives normally.  My very best thoughts are with you both, and if it becomes too much, get whatever help you need to get you both to a successful conclusion to the treatment.

(in reply to juliaoceania)
Profile   Post #: 57
RE: Chemo - 12/29/2007 10:09:00 AM   
ownedgirlie


Posts: 9184
Joined: 2/5/2006
Status: offline
quote:

ORIGINAL: Aileen1968

You've all written some lovely things to me here and in private email.  Thanks for that.  Just to clarify some things.  He isn't supplementing with any kind of alternative medicine since he started chemo.  We discussed and agreed that we didn't want to take any chance with counteracting the chemo.  Once he realized that he was going the chemo route then he decided that he needed to go full force with it.  Only time will tell if that's the right decision.  What he is doing is being proactive with keeping himself as healthy and strong as he can through his food choices...organic, easily digestible, etc.   He doesn't drink soda or things like that and can't stand anything manmade...highly processed and fast food type.  He's sticking with lots of veggies, fresh juices, organic chicken and such.  We're keeping it simple.  He does plan on completely detoxing his body after he's done with chemo. 


Hi Aileen,

I wish you both health and wellness.  My thoughts are with you.

I saw this and wanted to share something.  My sister's husband is dealing with multiple myaloma, a very serious cancer.  He is seeing a nationally renowned specialist in San Francisco.  His doctor told him his body is in the best possible health to deal with chemo and to prolong the detrimental effects of his cancer.  The reason for this is he IS supplementing with altnerative care.

There is a process called "Nutritional Response Testing," or, NRT.  Google it.  They have tested his blood and muscles and determined what nutrition his body is laking and what he needs to boost.  His NRT doctor knows he on chemo, and his oncologist is aware of his NRT treatments.  His NRT doctor, a reputable chiropractor, has him on the nutritional herbs and vitamins that his body has been drained of, to reboost his health.  He curbed his diet as well, avoid any added chemicals, such as preservatives, colorings, msg type flavorings...and other foods that are harmful to him, which he had no idea about.

Because of this, he is at a perfect weight for his body, and his blood counts have stabilized.  His original prognosis was 6 years; now it's 10.  It really may be worth looking into. 

Here is an NRT wellness center in New York.  If that's too far, they may know of or recommend someone closer to you:  http://www.acquastar.com/html/nrt.php

I really wish you the best, Aileen.  Retaining hope is an amazing help, as well.  Don't lose it; attitude is everything. 

(in reply to Aileen1968)
Profile   Post #: 58
RE: Chemo - 12/29/2007 10:28:45 AM   
Aileen1968


Posts: 6062
Joined: 12/12/2007
From: I miss Shore, New Jersey
Status: offline 		Thanks so much everyone for the advice, info and encouragement here and on the other side.  The links are especially helpful.

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Profile   Post #: 59
RE: Chemo - 12/29/2007 10:50:06 AM   
kishasub


Posts: 49
Joined: 1/13/2006
Status: offline 		Unfortunately i have no helpful advise just wanted to send my best wishes to you.

(in reply to Aileen1968)
Profile   Post #: 60
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