adoracat
Posts: 1779
Joined: 2/16/2007 Status: offline
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quote:
ORIGINAL: LadyEllen DesFIP - indeed, perhaps the problem is the lack of (and across most of the UK at least, absence of) adequate palliative care specialists? One thing which does annoy me even so though, is the ridiculous notion of saying to someone who is dying and in severe pain that "you have had the maximum dose" of pain medication - what does it matter? Theyre dying and the physician is worried about what - liver damage? That many cancer patients dying at home and in hospitals actually die from morphine overdose should be noted though - I am informed that nursing staff do turn the dose up to ensure they slip away peacefully when the time comes, though its not something thats acknowledged as such. And the other thing which annoys me is the tendency for hospitals to continue trying to cure dying people with medicines which have become unnecessary and the side effects of which make the experience of dying so much more unpleasant. There is such a lack of palliative care specialists that this happens all the time and achieves nothing but distress for the patient and their family. This occurs it seems to me because of a misunderstanding of the duty of care staff have - they seem to believe that if they stop trying to cure then they are being negligent; clearly they are not, but I'd bet now that some idiot in management would have them into disciplinary procedures if they stopped treating to cure and started treating to relieve. E tis something i can get angry about very easily. fallcon died of cancer. his nurses would NOT give him adequate pain meds....one nurse refused to give him ANY pain meds at all one night. the next day was when they finally got a palliative care doctor on board...who promptly increased his meds by 3x of what it was...the other doctors had been THAT conservative of his care. and EVERY time a new doctor came on the case, i had to fight that same battle again, for his pain meds to be left alone. and when we made the decision that enough was enough, the chemo wasnt working, they couldnt do any more surgery, let it go, they didnt want to accept that, either. trying to cure is one thing. i can understand that. but postponing/prolonging death isnt the same as curing, not by a long shot. kitten
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