Bi-polar and schizophrenia (Full Version)

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purepleasure -> Bi-polar and schizophrenia (6/16/2008 3:51:51 AM)

Ok, some of you may or may not know my family situation.  Long story, short, without the gruesome details... I have a handicapped brother that lives with me.  He is retarded, autistic, bi-polar and schizophrenic.  His ability to communicate is VERY limited.

This question is for people that HAVE bi-polar syndrome or schizophrenia.  When you are cycling, what kind of thoughts are going through your mind?  I want to be able to help my brother as much as possible, but he is unable to tell me his thoughts.  His frustration/cycling is upsetting to us both. 

Yes, he is on medication, but there are moments that he needs a little something extra, be it attention (and love) or medication.

If you would prefer to contact me on the otherside, PLEASE do.




sirsholly -> RE: Bi-polar and schizophrenia (6/16/2008 4:39:21 AM)

Pure...the only thing i can add here is how much i admire you. You have a heart of gold and a level of courage that i envy. How easy it would have been to put your brother into a home and walk away.

The would is full of quiet unsung hero's. You are one of them.....




purepleasure -> RE: Bi-polar and schizophrenia (6/16/2008 4:49:55 AM)

thanks sweetie!






chaos24 -> RE: Bi-polar and schizophrenia (6/16/2008 4:51:54 AM)

I have Bipolar. In a "high" or manic phase, I can't sit still. Everything seems to be moving too slowly, and I get impatient. I have to keep moving. I have to have something to do, and at the time, whatever I'm occupying myself with may seem important even though its not. I feel very social, happier, more likely to react emotianally to people and my enviorment both positively and negatively. In a "low" or depressive phase, I isolate. I want to sleep, be away from everyone, be on my own. I get very lethargic and spaced out.

Bipolar is somewhat different for everyone, and without tools to even be able to tell when a cycle is changing must be incredibly tough. Your brother is lucky to have your unflagging support.




purepleasure -> RE: Bi-polar and schizophrenia (6/16/2008 6:19:29 AM)

Thank you for sharing this!  It helps me to understand some of the "whys" of what my brother is doing at a particular time.  By knowing this kind of information, I can be sure to have the materials for some of his favorite activities onhand. 

This also helps me to understand why sometimes he will sleep for 24 hours or longer, except when he is woken for his medications, or at the other end of the spectrum - when he doesn't sleep at all for 2-3 days straight.




bookworm966 -> RE: Bi-polar and schizophrenia (6/16/2008 6:31:16 AM)

I'm bipolar.  I swing more towards the depression side, although I do have hypomanic episodes.  For me, it isnt what the thought IS, but that it wont leave.  I get something stuck in my head and it stays there.  It can be something important that I agonize over or something very unimportant that becomes important in my fractured mind.  Your brother has it even harder because of the multiple diagnoses.  Sometimes all you can do is be there, keep him safe, make sure he takes his meds, and eats.  Sleeping is a way not to deal with whatever is going on, and we truly cant help it.  We cant function, so we sleep.  Hypomania is usually considered kind of 'fun', because we feel productive and on top of everything.  True mania is dangerous, both to him and people around him.  He's very lucky that he has you.  Stay strong and take care of YOU. 




DesFIP -> RE: Bi-polar and schizophrenia (6/16/2008 8:54:47 AM)

My oldest is bipolar. She cycles between anger and depression. One of the things that is most important is keeping her eating and sleeping habits on a steady schedule. Start skipping meals, staying up late, and she's bound to crash. Pay attention to the physical, because he may not always be aware of how he feels.




ThundersCry -> RE: Bi-polar and schizophrenia (6/16/2008 9:09:34 AM)

My hats off to you and...yours.
 
I had a brother...11 months younger than me who was...from 18 on...schizophrenia...
 
Just knowing you are taking care of him, letting him live with you says alot about ...you.
 
At some point in time one can only hope they accept taking their meds...
 
Love...compassion... is what they need.
 
The disease did not rob me of a brother...my selfishness...did.
 
Bless you...
 
Not sure I want to nor can say....much more.




Domin8tingUrDrmz -> RE: Bi-polar and schizophrenia (6/16/2008 9:26:14 AM)

My mother was diagnosed as bi-polar/schizophrenic when she was 19.  She had her first hospitalization for schizophrenia the day I was born (she was commited because she was a threat to both herself and to me).

When she is 'manic' she gets into her religious zone and believes that god will cure her and she doesn't feel the need to take her medicine.  She often puts herself in dangerous situations and sometimes puts others in dangerous situations even though she has no 'intent' to harm anyone.  She once was babysitting for a young woman for a period of several months and went into a manic mode, off her meds, and believed that the child she was watching was HER child that she had conceived with Elvis Presley.  The police had to intervene and remove the child from my mother's arms to return him to his mother. 

Her depressed moods are often very intense too.  She has both aural and visual hallucinations and most of her depressed episodes involve terrible conversations with her deceased father.  She has referred to me as 'the Cat Woman' (an evil woman who works for Satan) during some of these episodes as far back as when I was a young girl.

She has been on multiple medications from Thorazine to Abilify.  These medications have caused her brain to deteriorate and she now has a child like mentality about many things.  Much of her good manners and intelligence has simply vanished - she was the valedictorian of her graduating class.

She is generally an overly kind person who doesn't realize when she's being taken advantage of by others and gives of herself freely and openly to anyone she can help.  However, if she gets in one of her swings (be it manic or depressed) she can outlash in ways that are uncontrollable and horrifying.  What is scarier still, is she has an uncanny ability to become 'sane' the instant she thinks she is about to be commited to the hospital and make anyone who is attempting to have her commited appear to be the one needing hospitalization.

Not every schizophrenic has the same type of hallucinatory problems my mother has - but it is something that you should look into.  Add autism to the mix (my boyfriend's brother is autistic), and I can only imagine how difficult it is for your brother to communicate his emotions.  If you can get help in supporting him (get him involved in a rehabilitation program which teaches him life skills, or other support) you may find that can be the difference in keeping your ownself healthy.

I wish you the best of luck.




purepleasure -> RE: Bi-polar and schizophrenia (6/16/2008 9:40:30 AM)

Everyone, you have been very helpful, and the people that have contacted me via cmail.  I have a much better understanding of how the brain functions in people with these conditions.

Now to help him find the words to help me help him.

I probably should add that my brother is 32, but his vocabulary is that of a 2-3 year old, and he functions at the level of a 6-8 year old.




Domin8tingUrDrmz -> RE: Bi-polar and schizophrenia (6/16/2008 10:07:17 AM)

This is why I recommend a rehabilitation program focusing on life skills.

My b/f's brother, who is autistic, has a vocabulary of a toddler as well.  However, through his program, he is capable of doing his own laundry, taking the bus to work and hold down a job (he reshelves library books - he knows the alphabet and through years of working there has learned where the books go through repetition), he can make his own bed, and make simple meals.  He still has outbursts, fits of excitement where he isn't able to fully control his movements, he is 39.  He still doesn't understand sexuality, when he is aroused, he attempts to pleasure himself, like a child might - he doesn't feel shame in this no matter where he may be.  So, those who know him, when they notice him becoming aroused have to remind him that it isnt appropriate to fondle himself in public and then send him to a private location.  Fortunately, this hasn't happened at his job.

My mother also participates in a program.  She now lives on campus and they monitor her medicine intake and other things.  If she refuses her medication she knows she will be commited to the hospital.  She also works part-time to help supplement her SSI.  My sister and I are still in contact with her doctors and program coordinators and talk to them when we feel her medication is no longer working effectively, and they either up her dosage or find another medication which works better for the time being. 

What I would love to see is a method in which they could actually fix the misfirings of the chemicals in the brain so that she wouldn't need medicine.  The medication is a catch-22.  Without it, she can be a danger to herself and others, but with it, it destroys her brain further causing her condtion to worsen.  She began receiving treatments in the early 70s, she has experienced shock-therapy and at one point, the doctors had seriously considered giving her a lobotomy even though the practice had been banned by the medical community.  Fortunately, my father refused to consent.  The medical community has made some great advances for those who suffer from schizophrenia, but sadly, they are still essentially in their infancy of fully understanding the workings of the brain.




CalifChick -> RE: Bi-polar and schizophrenia (6/16/2008 11:03:29 AM)

quote:

ORIGINAL: purepleasure
Now to help him find the words to help me help him.  I probably should add that my brother is 32, but his vocabulary is that of a 2-3 year old, and he functions at the level of a 6-8 year old.


Pure, do the two of you know sign language? It can make an amazing difference for some people who are autistic and/or mentally retarded. When they can't get the words out verbally, they may be able to get it out nonverbally.

Here is some info:

Sign language and autism.
Teaching sign language in the presence of autism.
Autism... A story of how sign language helped us.

Cali






doubleflash -> RE: Bi-polar and schizophrenia (6/16/2008 7:09:47 PM)

Pure,  You might find Temple Grandin's books helpful.  She is a high-functioning autistic.  Her "Animals in Translation" and "Thinking in Pictures" describe, in amazingly objective terms, how her autistic mind is different from "normal".  Might give you some insight into your brother's being.

You are deeply compassionate and caring.  Our thoughts are and will be with you and your brother.




DragonLadysFire -> RE: Bi-polar and schizophrenia (6/16/2008 7:38:39 PM)

Being retarded, bi-polar and schizophrenic are all parts of low functioning autism.






DiurnalVampire -> RE: Bi-polar and schizophrenia (6/16/2008 7:41:17 PM)

Bipolar and unmedicated here.
Cycling, thats easy.
When I am depressed, nothing much matters. Its a fight to get out of bed, much less do anything else.
When I am manic, nothing "important" matters becasue I have things I need to do. Granted I am never sure what they are, but they are more important than work, sleep or eatting.

DV




jlf1961 -> RE: Bi-polar and schizophrenia (6/16/2008 8:17:55 PM)

quote:

ORIGINAL: DragonLadysFire
Being retarded, bi-polar and schizophrenic are all parts of low functioning autism.


Excuse me?!?

None of those conditions are PART of any form of Autism!

While an autistic individual can exhibit any of those conditions, it does not carry on to the entire population of Autistic individuals.  To make such a generalized statement is borderline on prejudice and indicative of a complete misunderstanding of the condition.

I have a nephew who is low functioning Autistic, he is not retarded, bi-polar, schizophrenic or anything else, he is just Autistic.  The only other impairment is an inability to use verbal communication.  However, he can use sign language.

Like most low and high functioning Autistic individuals, he thrives in an ordered environment.  Strict schedual, everything with in the proper place, and properly ordered. 

Low and High functioning Autistic individuals have earned college degrees, even graduate degrees.  They can maintain jobs, live independantly, and even fall in love and get married.  It is not uncommon.  The IQ of an autistic individual is often above average, often in the low to high genius range.

Mental retardation, is defined as an individual with an IQ of 70 or below, and the degree of retardation is based on the IQ level. 

Hence, autism and mental retardation are not normally linked.  The so-called idiot savants, which is actually a misnamed condition, are autistic and have an uncanny ability to learn, and usually have IQ's that are well into the high genius range. 

A schizophrenic individual may during the course of his condition slip into a autistic state, however that does not classify the individual as autistic, and with the proper medication and treatment, the condition can be reversed.

Under many of the old medications, bi polar individuals often ended up in autistic states, usually after prolonged treatment with thorazene and other related drugs.  None of those drugs were even remotely intended to treat the individual but to control the individual, to the point of so screwing up the brain chemistry of the individual they were in a perpetual zombie state.  While this prevented manic or depressive cycles, it also prevented proper treatment, contributed to the individual's inability to function outside an institution, and left the person with an infant like mentality that became permanent.

For the record, and the facts are open to any one wishing to look into them, Thorazene and related medications were used quite extensively in mental institutions, both private and public to control bipolar, schizophrenic, autistic, any one with a violent social disorder (including combat fatigue, PTSD, and related conditions.)

Actual treatment of individuals suffering these conditions is actually a relatively new idea, beginning in the last 40 years or so, and becoming common  practice in the last 10 to 20, and widely accepted during that time as well.  Prior to that, individuals with those conditions were institutionalized, drugged, and controlled.

There is still a large percentage of the population that would prefer that people with these conditions be institutionalized, using the arguement that 'there is no way to insure the person will take his/her medication as directed, therefore they would become a danger to the community and themselves.' 

Those words are straight from the wording of a suggested bill sent before a state legislative body last year. 

I find it wonderful that people are so concerned with the welfare of the individuals who suffer from these conditions, as well as those vets who suffer from ptsd which in turn created the basis for paranoid, schizophrenic, and bi polar behavior.  It was also the motivating arguement that put individuals suffering the same conditions into Nazi death camps.

Now, I have PTSD, Bi Polar disorder, social anxiety and mild agoraphobia, all steming from my service in the US Army and combat duties.  You see, the military trains people to kill, they train you to react instinctively, they do not make a provision to return you to societ in a condition that is stable, which is why so many combat vets suffer from a number of psychological conditions.

We got those serving a country with a percentage of the population who would rather place people with those conditions behind fences and walls, regardless of how the developed the conditions. 

Which, FYI, is another reason that many combat vets solve the problem they place on the public in the easiest way possible, suicide.





chickpea -> RE: Bi-polar and schizophrenia (6/16/2008 8:42:06 PM)

quote:

verbal communication


i totally agree.  autistic individual can seem like nothing is going on up between the ears or that they don't know what's going on around them, due to lack of communication skills.  For some reason the brain is wired differently so its hard to teach them to communicate with others in a normal manner.  A lot can talk perfectly , but they somehow don't get that talking/communicating is connected with getting things done around them in their normal lives for them.  but many people mistake this observed lack of communication with a low I.Q., emotional disfunction, or whatever other mental illness one can think of.  So, besides the outward experience, austistic individual are exactly the same as normal people (they can be smart, dumb, ugly, pretty), but what they all have in common is that they don't communicate to other people in a normal straightforward manner. 

not communicating with others in a normal way is the biggest obstacle for autistic individuals in being independent or living a normal life. 




Alumbrado -> RE: Bi-polar and schizophrenia (6/16/2008 9:07:54 PM)

quote:

ORIGINAL: DragonLadysFire

Being retarded, bi-polar and schizophrenic are all parts of low functioning autism.





Saying 'Part of' autism may lend itself to some unfortunate conclusions.

Co-morbidity between those disorders or the appearance of those disorders and autism, is pretty well documented.

http://en.wikipedia.org/wiki/Conditions_comorbid_to_autism_spectrum_disorders




doubleflash -> RE: Bi-polar and schizophrenia (6/17/2008 6:38:07 AM)

In Temple Grandin's book, "Thinking in Pictures", she details her early autistic life,  describing strategies that helped her deal with the way her particular brain worked.  One facinating strategy was to confine herself in a device that pressed in on her from every direction.  She says that the pressure and confinement helped her calm her racing mind.  (Her parents helped her build the device -- there's a picture in the book.)   

Pure, I'm no doctor and I'm not about to recommend anything for your brother's situation.  But, you may want to ask his doctors if something like Grandin's device could help him. 





sirsholly -> RE: Bi-polar and schizophrenia (6/17/2008 6:57:00 AM)

quote:

ORIGINAL: DragonLadysFire

Being retarded, bi-polar and schizophrenic are all parts of low functioning autism.





to the best of my knowledge this is completely false




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