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Lockit -> A Christmas Miracle! (12/24/2009 10:41:22 AM)
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Last night something happened, that has been evolving, but we didn’t know how well until last night. So I am calling it a Christmas Miracle! It is a miracle in the sense that the medical professional’s said it couldn’t and wouldn’t happen and said that the outcome would be far different and devastating. I agreed that things would never be right and that certain things couldn’t happen, but believed that the brain injury protocol of all those medications for other illnesses, the speed them up drugs, the slow them down drugs, were a problem and causing most of what was happening. (The hyperactivity, the hallucinations, the walking around like a zombie and later voilence.)
As many of you know, my son has anoxic brain injury. He died and they brought him back and we had a mess! He was considered a severely brain damaged person, who would never be able to care for himself and would have to have twenty four- seven care. They wanted him committed to a facility and told me that he would most likely be strapped to a bed for the rest of his life because no facility would have the personnel to monitor him and keep him safe. He was so bad that he was rejected by every facility in the state and a couple out of state.
As a mother, I could not imagine a horrific life like that and fought them, feeling I had to protect my son and give him a better life even if it killed me to take care of him if things never improved. I first weaned him off the medications. No more hallucinations! I researched and researched and couldn’t find anything that was positive or would suggest that my son could be changed or helped. It wasn’t looking good, as most with anoxic brain injury become violent later on. I suspected that it was the medication and set out to prove things could be different if the protocol was different.
My son couldn’t remember three seconds ago… couldn’t remember ten minutes ago, much less a day before. He could remember things from childhood, but he always put different facts in and confused places and time frames and such. He couldn’t take care of himself and was like a toddler emotionally and eventually we felt he was mentally older, but no one could be sure. He understood adult jokes but didn’t quite get them as an adult would and was more like a fifth or sixth grader. He thought them very funny and naughty.
I finally found after many, many months how memory worked and that by using patterns I could help him form long term memories even though he had no short term memory at all. I set out to create patterns in his life and without the medication to put him to sleep… sometimes for days at a time, it was difficult to create patterns. But slowly, but surely it has paid off. He took a year to learn to make toast one time without being told each step of the way. The next day he forgot again and was inconsistent in all things, but slowly he was learning a bit more and sometimes remembered it.
Last night I learned that he remembered something from months ago, that happened only one time, with my ex husband who he didn’t know before, who had stayed here for almost three weeks. I was stunned, amazed and decided to learn more. I asked him questions as we shopped. My daughter came and asked him questions. We were all stunned and amazed!
What they said could never happen, is happening! What they said of him needing to be in a facility and most likely strapped to a bed for the rest of his life and that brain injury protocol… has been proven at least in my son’s case… to be faulty medical opinion!
My son is remembering months ago! Each question we asked him, he proved that he not only remembered what we were asking about… but more detail we were not prompting him to remember or agree to by our questioning. Lately he has been more involved with the grandkids and though they will fight or don’t like him trying to hold them and kiss them like one would a baby, he wants to play with them and believe me, that can be a real challenge to mom and grandma because they are like a bunch of toddler’s and they do make trouble by getting uncle Charlie to do what they know they shouldn’t do! LOL
So it wasn’t a Christmas miracle that happened on Christmas or at Christmas time… but it was a miracle found out at Christmas time and believe me… we are rejoicing here! Now I know my duties will change and increase somehow as I learn to figure out what we might be able to do with this and I can’t help but hope for the impossible… but… we have our miracle and I had to share it because of how I feel, but also because of how many of you have played a role in supporting me, helping me and have followed our little story.
If my back wasn’t broken from all that shopping… I would be dancing, but I am dancing in my spirit, you can be sure of that!
Happy Holidays to all and may you be as blessed as my family is!
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