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Lockit -> RE: Cash strapped states cutting aid to the disabled (8/13/2010 4:45:58 PM)
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When I took on the care of my son and fought to keep him with me rather than put away somewhere tied to a bed because of the heavy medications they gave him, I had to learn my way through a process that was... insane. Alone with no assistance and no money yet, I had to care for him and even hide him for a while. Once I proved I was correct in what he needed and he did well, no one could touch us.
Everyone told me to go to California and believe me, that is what I wanted to do since I am a native Californian and missed it and it would be best for my health and ability to care for him. BONUS was that California, unlike many other states including the one's I could live in or move to, would pay me to care for him. Even that would be cheaper than a nursing home, but some states didn't see the worth in that. I can't blame them actually because I believe one way or another the federal government pays for that rather than the state. I could have protected myself with the income I could have gotten to care for him in California or a few other states. Had I gone that route, we would now be in serious trouble because we would have had to find a way to move to a place that was cheaper to live and afford the move. Most likely losing a lot I had done to establish things.
I had been watching the economy and knew there was a chance that one day that check wouldn't come in and we would be in serious trouble. So, I found a hot-sticky-humid place with little I enjoy, to establish my son, rather than me and what I wanted in life.
Nursing homes the federal government will pay for. It is iffy in getting home care in many places. Colorado had some, but it wasn't 24/7 care. I could get seven days where they would put him in a nursing home, a year so I could have a rest or could get some assistance with maid service or something like that at the tune of $150. an hour.
As payee for my son, I cannot get help or one red cent. No relief, no help. It pissed me off that the tax payers would have to pay anything for my son and I tried to keep expenses down. That was my choice and I am able to do it so far, but... one day... the tax payer will be paying far more because when I am gone, if my daughter can't do it for some reason... it's going to cost far more.
The whole system is broken and the way they do it, it will eat up whatever is left of the money that provides for the ill, disabled and elderly. Then what will we have? What do you do with these people? First they go to nursing homes until they close them because the money is gone or people are neglected. What then?
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