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A stand borrowed from Pandora - 5/30/2006 10:10:09 PM

Reflectivesoul

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Joined: 4/25/2006
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While thumbing through threads I clicked on the link that used to be under Pandora's name in her signature. I dont know how many of you have gone and read her pages but it hit home with me pretty hard. I lost a very dear friend of mine to kidney failure. She suffered from diabetes from an early age. She was not only one of my best friends but she would also have been my sons aunt ( her brother is my sons dad ). My son will never know her because she passed away 3 months before he was born. She had been on a transplant list for many many years. The one time that they did find a match for her, she was too sick to be able to have the surgery needed to give her the kidney that would have saved her life.

As I read through Pandoras pages on Organ donation I sat here with tears in my eyes because I have watched so many people that with just a bit of help would have lived fuller and longer lives, instead they passed away leaving family and friends with a huge gaping and empty wound.

Everyday in the BDSM we take the responsibility to care for other people onto our shoulders and I as an organ donor believe that it is also our place to look out for those that arent healthy and that need help. They do have live donor programs for organs that can be given without harming either individual. I cant stress enough to talk to your partners find out what their wishes are as far as if disaster strikes is it their wish to donate their organs to someone else.

Being diabetic this is a huge reality and concern for me as well. I wonder a lot of times will this happen to me? Will I end up sick and in need of a kidney or something else and die waiting for it... leaving my son and family without me... I won a battle over death last year and damn near ended up on dialysis because of the problems I was having. I was lucky to get through it and to be ok right now. Will that last, who knows?, but I do know that everyday for each of us is something to be greatful for and if we can help someone even in the event of our death, they would be eternally greatful to have that one more day...

I know that this is a very personal thing for a lot of people and I know some just arent comfortable with the idea itsself but I'm asking you to think about it, talk about it, discuss it with eachother....

~RS~

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RE: A stand borrowed from Pandora - 5/30/2006 11:55:42 PM

MsMacComb

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From: My Mothers womb.
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Sorry to hear about your loss. Everyone should have donor checked on the DL, have a will or trust and directive.

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RE: A stand borrowed from Pandora - 5/31/2006 12:14:46 AM

becca333

Posts: 1050
Joined: 4/11/2006
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When I'm done with all my bits, anyone who needs them is welcome to them. I like the idea that I can help other people after my death, that I can touch their lives that way.

I think the government should assume that everyone is an organ donor unless they have specifically ticked a box that they WON'T donate.

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Post #: 3

RE: A stand borrowed from Pandora - 5/31/2006 5:56:29 AM

LuckyAlbatross

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It's one of the reasons I still support titles and leather competitions- it allows people who have strong and worthy causes within the community to do excellent outreach and make us more than another vain sub-culture.

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RE: A stand borrowed from Pandora - 5/31/2006 7:21:55 AM

Reflectivesoul

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Thank you for the replies...

For those of you that come through and read this thread, how do you feel about Organ Donation?

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ooooo..I bet THATS gonna leave a mark!!!!

Equal opportunity pisser on-er ... heh..

Gimme some crayons, I want color and I want it now DAMNIT!

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RE: A stand borrowed from Pandora - 5/31/2006 7:28:33 AM

LuckyAlbatross

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quote:

ORIGINAL: Reflectivesoul
For those of you that come through and read this thread, how do you feel about Organ Donation?

Absolutely supportive, as is everyone in my family. One of the few consolations when my aunt died was that she was young and generally very healthy and was able to give many of her organs to help others.

While I don't want to get involved in the ethics of deciding who gets which organs- I'm completely supportive of it.

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Find stable partners, not a stable of partners.

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RE: A stand borrowed from Pandora - 5/31/2006 7:38:40 AM

Reflectivesoul

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Joined: 4/25/2006
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quote:

While I don't want to get involved in the ethics of deciding who gets which organs- I'm completely supportive of it.

I dont feel that there should be a decision as to who gets what, if they have a need of the organ and it is available they should be able to recieve it. To say that this person should get an organ over that person in my mind is trying to put a value on one life over the next which to me isnt even remotely right. Human life is valued to every person in someones family no matter what the reason to needing an organ is, the person in need is special to someone and thats all I feel should matter. I dont feel that a condition should be placed on anyone needing a transplant, quality of life is the main goal with transplantation of organs. Providing that person with as normal of an existance as possible.

_____________________________

ooooo..I bet THATS gonna leave a mark!!!!

Equal opportunity pisser on-er ... heh..

Gimme some crayons, I want color and I want it now DAMNIT!

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Post #: 7

RE: A stand borrowed from Pandora - 5/31/2006 9:17:32 AM

leakylee

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I am highly supportive of being an organ donor. As I am of supporting any local cancer organizations. Having lost a god son to this illness, I know the benefits that both activities.

love and light
lee

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RE: A stand borrowed from Pandora - 5/31/2006 9:26:56 AM

BlkTallFullfig

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Sorry to hear about your loss.
I'm a donor, and most importantly, my family knows it, so they can follow through on my wishes if anything happens to incapacitate me to make decisions at those hours. M

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RE: A stand borrowed from Pandora - 5/31/2006 10:02:16 AM

Reflectivesoul

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quote:

ORIGINAL: leakylee

I am highly supportive of being an organ donor. As I am of supporting any local cancer organizations. Having lost a god son to this illness, I know the benefits that both activities.

love and light
lee

I am also a supporter of cancer societies.... one of the reasons my hair is so long... I donate it every 4 years to the local cancer society for wigs *smiles* I've donated enough at this point for 8 wigs... I figure its going to keep growing back for a long while to come.... so might as well put it to use for someone who isnt as fortunate... I've been donating for about 16 years now and they usually get 36" + each time... I'm close to the cut it off point again but I dont know if I'll do it this year or not, its been a long time since I have even gotten to enjoy having long hair... so I may let it continue to grow so that when I do get it cut off again I'm not bald again... cause usually when I have it cut off I end up getting the back shaved up about half way then the rest angled down to where the longest point reaches my chin... I think i have kinda out grown that look this time so I am kind of undecided at this point..

_____________________________

ooooo..I bet THATS gonna leave a mark!!!!

Equal opportunity pisser on-er ... heh..

Gimme some crayons, I want color and I want it now DAMNIT!

(in reply to leakylee)

Post #: 10

RE: A stand borrowed from Pandora - 5/31/2006 10:11:37 AM

Dustyn

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Joined: 4/5/2006
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Not much of my insides worth parting out, but if someone has a use for them after I'm done with them, rock -n- roll. Not like I got a use for them at that point.

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Can you be more amusing?

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Post #: 11

RE: A stand borrowed from Pandora - 5/31/2006 10:26:51 AM

Proprietrix

Posts: 756
Joined: 7/15/2005
From: Ohio/West Virginia
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quote:

ORIGINAL: MsMacComb
Sorry to hear about your loss. Everyone should have donor checked on the DL, have a will or trust and directive.

quote:

ORIGINAL: becca333
When I'm done with all my bits, anyone who needs them is welcome to them. I like the idea that I can help other people after my death, that I can touch their lives that way.
I think the government should assume that everyone is an organ donor unless they have specifically ticked a box that they WON'T donate.

I have a problem with these stances.
It’s certainly fine by me that people’s bodies aren’t "up for grabs" once they die, and I think we should all have to grant permission rather than have assumed consent about what happens to our bodies after death.

I personally do not put on my driver’s license that I’m an organ donor. My religion would have it that I do not donate certain body parts. By checking off that I am an organ donor, I cannot specify which parts of my body are available and which are not. I have a friend who practices a religion that prohibits organ donation altogether. And yet another who practices a religion in which the body is to be treated in a certain manner for a certain amount of time. I believe to infringe on one’s spiritual beliefs about their passage would be the ultimate display of disrespect and selfishness.

If people choose to donate their organs, then I encourage them to do so. I encourage them to make their choices known. Be that putting it on their license, writing a document, passing the word to kin and friends, etc… But I don’t make a judgment about whether or not they should or should not do so. It is absolutely their choice. And I vehemently disagree with any stance that takes that very important choice away from them.

Edited because I can't spell.

< Message edited by Proprietrix -- 5/31/2006 10:28:47 AM >

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IMO, IMHO, YMMV, AFAIK, to me, I see it as, from my perspective, it's been my experience, I only speak for myself, (and all other disclaimers here).

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Post #: 12

RE: A stand borrowed from Pandora - 5/31/2006 10:35:56 AM

Reflectivesoul

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Joined: 4/25/2006
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quote:

I believe to infringe on one’s spiritual beliefs about their passage would be the ultimate display of disrespect and selfishness.

If people choose to donate their organs, then I encourage them to do so. I encourage them to make their choices known. Be that putting it on their license, writing a document, passing the word to kin and friends, etc… But I don’t make a judgment about whether or not they should or should not do so. It is absolutely their choice. And I vehemently disagree with any stance that takes that very important choice away from them.

I agree completely that it should be a choice, because I know in some religions sharing even a blood transfusion is a huge NO NO... I know of a couple that had been married almost 56 years and the wife got seriously ill and she needed surgery but she would not allow a transfusion, without the surgery and the transfusion she would die, the hospital went then to her husband to try to get consent, after 24 hrs and visits from a lot of people in their church the consent was refused. The husband stayed with his wife untill she passed on, and he respected her choice and their choice even knowing that it would cost her life he did as she wished and that is a huge thing.

Thus the reason all I have ever asked is that people discuss it and make their beliefes known.... I wouldnt condemn anyone if they decided that for their own reasons they wont donate blood, organs, whatever... it is their body therefore it is their choice.

< edited cause there seems that Trix's typo deamons bounced over here.... lol >

< Message edited by Reflectivesoul -- 5/31/2006 10:37:38 AM >

_____________________________

ooooo..I bet THATS gonna leave a mark!!!!

Equal opportunity pisser on-er ... heh..

Gimme some crayons, I want color and I want it now DAMNIT!

(in reply to Proprietrix)

Post #: 13

RE: A stand borrowed from Pandora - 5/31/2006 10:48:44 AM

MistressLove999

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From: Daytona Beach, Florida
Status: offline

So sorry for your loss R.S., hopefully you are taking good care of yourself too.
As one who has donor/cadaver bones in her neck, I can never thank the person who was thoughtful enough to donate, but because of them it did save me some pain.
These types of donations I had never even considered until my doctor wanted them for me. Yes, I was alsways the type who said sure anything of mine that they can donate sure....thinking maybe some blind person/child might see with my eyes or even hear with my eardrums etc........heart, lungs, etc......
I know it's all freedom of our own choice to donate or not, as it should be, hopefully more people will realize what a beautiful thing they can do..........I have made my family very aware of my choice and have it on my drivers lisc. plus have a signed & witnessed organ donor card in my wallet. They are welcome to take anything they can to make someone else's life better.........I mean if they can use it why the hell not...........

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Play nice & Be Well,

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RE: A stand borrowed from Pandora - 5/31/2006 11:02:58 AM

Reflectivesoul

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quote:

ORIGINAL: MistressLove999

So sorry for your loss R.S., hopefully you are taking good care of yourself too.
As one who has donor/cadaver bones in her neck, I can never thank the person who was thoughtful enough to donate, but because of them it did save me some pain.
These types of donations I had never even considered until my doctor wanted them for me. Yes, I was alsways the type who said sure anything of mine that they can donate sure....thinking maybe some blind person/child might see with my eyes or even hear with my eardrums etc........heart, lungs, etc......
I know it's all freedom of our own choice to donate or not, as it should be, hopefully more people will realize what a beautiful thing they can do..........I have made my family very aware of my choice and have it on my drivers lisc. plus have a signed & witnessed organ donor card in my wallet. They are welcome to take anything they can to make someone else's life better.........I mean if they can use it why the hell not...........

thanks

I'm on a pretty strict med schedule at the moment.... this is a whole new ball park for me, due to the problems I had last year and the things surrounding it I wound up diabetic... it took 10 months to be approved for diabetic education and to see a specialist... that was a nightmare... now though I've been through the med changes and the lets try this that and the other things and have found what seems to work really well for me. I'm not needle shy or anything and theres some issues with my chemical make up that made it where I cant use the pills to control diabetes so I am on insulin 3-4 times a day, depending on how my sugars run. When I was first diagnosed last year my sugars were in the 500's which is really bad.... but not nearly as bad as some people that go years undetected.... within a month of starting the meds ( I started meds in November of last year ) my sugars were down to 220 which is still high but a far bit better than they had been. Right now after all the med changes and finally getting into a good routine and getting on a good roll with the diabetic meal plans my sugars run between 100 and 130 on good days ... which is basically normal. I'm very very strict on myself as far as watching what my sugars do because I DONT want to end up with the problems that diabetes can cause.

An interesting thing I found out about tissue donation that I wanted to share too is:

Did you know that they are now using the removed foreskin from infants to grow skin cells to help burn patients to avoid having to get grafts that leave all those scars.... I thought that was really cool. I had the fortunate experience of seeing a documentary on a woman that had suffered a serious reaction to an antibiotic and she shed all of her skin ( it was kinda gross and errie to watch ) they used this technique with her and after several treatments she now has skin on her body that is as delicate as a newborns... its absolutely flawless.... Anyhow I just thought it was rather interesting...

_____________________________

ooooo..I bet THATS gonna leave a mark!!!!

Equal opportunity pisser on-er ... heh..

Gimme some crayons, I want color and I want it now DAMNIT!

(in reply to MistressLove999)

Post #: 15

RE: A stand borrowed from Pandora - 5/31/2006 2:57:05 PM

Reflectivesoul

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Joined: 4/25/2006
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Again, thank you to those of you who have posted *smiles*

_____________________________

ooooo..I bet THATS gonna leave a mark!!!!

Equal opportunity pisser on-er ... heh..

Gimme some crayons, I want color and I want it now DAMNIT!

(in reply to Reflectivesoul)

Post #: 16

RE: A stand borrowed from Pandora - 5/31/2006 3:55:37 PM

slavejali

Posts: 2918
Status: offline

I don't know how I feel about organ donation and issues surrounding prolonging life anymore. I think I'm quite conflicted about it.

My late husband was diabetic and that was one of the biggest reasons he couldnt cope with the infection in his lungs that finally killed him. During the process of his battle with this tropical infection ( a 2 year process), he died, had to go on life support, for a week I sat by his bed not eating or sleeping, just praying for him to survive and not leave me. He did wake up, and did come off life support...but what to? Major lung surgery which left him with a drainage bag hanging out of what was left of his lung, constant pain from neuropathy, ulcers that wouldnt heal, protien eating his muscles, inability to walk, vomiting every day, sky rocketing blood pressure, kidney failure which ended up with dialysis, blindness which was the final straw that broke his will to live. I will never forget things like, collapsing from exhaustion and falling asleep to wake up to him sitting in a chair with bull-ants eating his feet, blood pouring out from their bites and he wasnt even aware it was happening, or rocking him in my arms as he was crying from the pain when his kidneys were failing, begging to die....or just the feeling of being totally out of control in my ability to do anything but pallative care.

If there was some way that could have prevented this would I have welcomed it? God yes. If an organ transplant was an option for him, would we have taken it? Fuck yes. Do I often think about that last year and wonder if I should have just let him go when he was originally on life support? Yes......................

He was a special man, I couldnt bare to think of life without him, I honored his spirit, loved who he was beyond a decapacitated body...but to prolong his life for reasons of my selfishness not to want to let him go? What is quality of life?

I sometimes think about all the effort that goes into prolonging the life of depressed suicidal people...I have to ask "Why?" If they want to die let them. I see old people like vegatbles in nursing homes just sitting in a chair day in and day out..and I wonder whats the point? I think we are breeding a weakened society due to a lot of our medical so called advancements. Keep the body alive, keep the body alive.... i just dont see its importance so much anymore.

Yet in the same breath....If i have a headache i take a pill....if I have something wrong with me I go to the doctor and get it fixed and I would expect everyone else to do the same, I support people with mental health problems through the appropriate channels..I look into the eyes of an old person in a nursing home and its like I can see the wisdom of their lives....and would never wish anyone not to have a chance of living a more productive life in whatever way that is necessary through medical avenues....

Then there is the subtle aspects of organ donation..even blood transfusion.... you know if I ever put on someone else coat, I can feel them, its like their energy is over me, mingling with me, it effects my thoughts and mood..I'm really aware of this..I think in a subtle way anything we touch leaves an imprint of ourselves behind...I can only imagine what kind of energy a transplanted organ would be carrying.... on this subtle note...I dont know if I would ever agree to one...and I know for that reason I would never offer my own organs to someone else.

So anyways...I'm conflicted on this subject...for many reasons..but all in all... I think the life we live is more subtle than the gross physical manifestation we interact within...and I think life is really to be lived inwardly....and whatever we need to do to make our outer physical circumstances more conducive with that, we should do.

RefelctiveSoul.... sorry for this horrible post..all I can say is...please take care of yourself...keep your sugar levels normal...get massage.....do everything you need to do.

< Message edited by slavejali -- 5/31/2006 3:58:02 PM >

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RE: A stand borrowed from Pandora - 5/31/2006 4:13:18 PM

Sinergy

Posts: 9383
Joined: 4/26/2004
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Hello A/all,

I have my donor symbol on my drivers license. I figure Im not using it any more I am more than willing to allow somebody else the opportunity for a better life.

The other thing I do is donate blood platelets. I watched a close friend die of lung cancer many years ago. In the final years of her life, undergoing chemotherapy, she told me that one of the things chemo does is wipe out the bodies ability to manufacture blood platelets.

Platelets are those parts of the blood which pop and spread fibrous matter when exposed to oxygen. They allow wounds to scab over. To donate them one gets a tube in one arm, a tube in the other arm, the blood flows out tube A, is centrifuged and the platelets drawn off, and flows back in through tube B. This can be done every two weeks.

I dont recommend it for everybody, but the idea that I should be burned or buried with all my parts intact, preventing some 11 year old from having functioning kidneys and a normal kid life, seems rather selfish on my part.

Just me, etc.

Sinergy

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Post #: 18

RE: A stand borrowed from Pandora - 5/31/2006 4:42:05 PM

Reflectivesoul

Posts: 1777
Joined: 4/25/2006
Status: offline

jali,

Its not horrible, and if I werent aware of the fact that people are conflicted on this for many levels I wouldnt have posted. I know the risks and the horror stories that are involved with diabetes as well. For now I'm healthy and things are good so thats my focus, if I focus on the could happens I'd never be able to get up in the mornings... I figure I'm pretty lucky, I survived an infection that usually claims the lives of its victims and I'm here to tell of it... no matter what hurdles we face in life we grow and we learn from them.

I am so sorry that you went through such a traumatic and horrible time with yours. I watched my best friend go through a lot of the same things. The final straw that took her was a massive coronary brought on by the years of crashes and comas from her sugars being messed up. I watched her die from not listening and taking care of herself, no matter what we said or did she didnt listen.

From working in nursing homes and private care I've seen some stuff that would make people literally ill and I've seen things like you did with the wounds and them not even knowing...

What is quality of life....? To me quality of life means actually being able to live life and enjoy it, if you are to the point where even with a donated organ you wouldnt be able to live a decent life and be able to get around and enjoy things, then I dont know what medically could be done, but for someone who has a chance to live life and to be happy, if it takes giving an organ to them to help them be healthy then I'm all for it.

One thing I have noted is the majority of people that do get put on lists for transplants WANT to live, they want to get better and they strive for it. The ones that dont want to fight anymore or dont want to go through with something like that make a choice to stay off of the lists.

If ya ever need someone to talk to or vent to my box is always open *smiles* and I'll gladly lend you and ear to bend and an understanding shoulder...

~RS~

_____________________________

ooooo..I bet THATS gonna leave a mark!!!!

Equal opportunity pisser on-er ... heh..

Gimme some crayons, I want color and I want it now DAMNIT!

(in reply to Sinergy)

Post #: 19

RE: A stand borrowed from Pandora - 5/31/2006 4:54:38 PM

LadiesBladewing

Posts: 944
Joined: 8/31/2005
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My mate and I are both organ donors, and, when everything useful has been harvested (including any skin that can be used for grafting), anything left is to be sent on for research.

We're not using the bodies, and don't see the point in wasting a 6x6x3 plot of precious earth to bury a box that will never disintegrate, with a body inside that will never be returned to the soil. (If anything is left over after the research, it will be creamated and returned to our next of kin. I've said that I want my oldest son (born in Anchorage) to take my ashes back to Alaska and ask the Rangers about re-sodding a portion of the migratory grounds for the elk and caribou with my ashes beneath the sod. Then I told him I want him to take a month and treasure the state where he was born -- visit everything... take the photo album and go to all the places we visited when I was pregnant with him and during his first 2 years of life. SR is going to have her ashes scattered in the desert.

Our living wills state that at the point at which we are considered "dead", if they can harvest then, that they can take what they need...though the hospital can continue to use life support if they are waiting to be able to use a body part and it can't be stored (some have a limited period after which they can't be used any more once they're removed.)

Neither of us is eligible for living organ transplants, unfortunately, though SR is a white cell, plasma, and packed red cell donor.

Da'Avatar ZWD

www.klashaan.org

< Message edited by LadiesBladewing -- 5/31/2006 4:58:46 PM >

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