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RE: Paxil and the Harm It Did Me - 4/16/2012 6:23:11 AM   
TheFireWithinMe


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It appears that the fact that Paxil is highly addictive and tremendously hard to get off of was not disclosed by the company until recently. Originally it was marketed as very easy to get off of. Indeed that is supposed to be the case with SSRIs - it isn't with Paxil.

They've changed the product info now, thank god, maybe it'll keep others from going through what I am others who've been prescribed Paxil have gone through.

My current doctor is awesome, I see him regularly to monitor my health. Yeah in this case we dropped the ball; we both thought I needed Paxil, clearly (judging by how I feel now) I don't.

Fire

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RE: Paxil and the Harm It Did Me - 4/16/2012 10:59:14 AM   
DesFIP


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quote:

ORIGINAL: TheFireWithinMe
Add to that the fact (and the company now admits it) that it's highly addictive and extraordinarily hard to get off of, which is not supposed to be the case with SSRIs.
Fire


All the SSRIs require a long taper off. That's been known from the beginning.


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RE: Paxil and the Harm It Did Me - 4/16/2012 12:54:07 PM   
TheFireWithinMe


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My point DES is that when Paxil first came out no mention was made in the product monograph that in fact quite a few people suffer severe side effects even when tapering it. The monograph has been changed so that info is included.

Yet apparently (judging by what people have written both on quitpaxil.com and in huuuuuuge numbers to the site's owner) most people aren't told about those side effects. So, like me they quit and those nasty side effects hit -literally the first day. The worst seems to be brain "zaps", which feels like an electrical current from the head to the feet.


Eta: the brain "zaps" occur every time the person takes a step or moves their head I had something similar when going off Dilaudid -debilitating to put it mildly.

Fire

< Message edited by TheFireWithinMe -- 4/16/2012 1:26:37 PM >


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RE: Paxil and the Harm It Did Me - 4/16/2012 3:19:16 PM   
Soyokaze


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quote:

ORIGINAL: kalikshama

Lots of pharmaceuticals can have side effects worse than the symptoms they are supposed to treat. Be informed.




Kind of off topic, but I'm doomed to think of this whenever I think side effects:

"Large doses of sumatriptan (200 mg/day) can cause sulfhemoglobinemia, a rare condition in which the blood changes from red to greenish-black, due to the integration of sulfur into the hemoglobin molecule."

http://en.wikipedia.org/wiki/Sumatriptan#Side-effects

Green blood coolest side effect ever.

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RE: Paxil and the Harm It Did Me - 4/16/2012 6:43:56 PM   
dcnovice


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quote:

I took zoloft for two and a half years. Yes, my sex drive and ability to orgasm was lessened. On the other hand, I wasn't planning to off myself.


This reminds me of when I started on Prozac. My sister was worried about tong-term risks for such a (then) new drug. I understood her concerns but felt, "Without some sort of help for this depression, there ain't gonna be a long term."

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RE: Paxil and the Harm It Did Me - 4/16/2012 6:56:25 PM   
angelikaJ


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As I understand it, of all the SSRIS, for some reason Paxil seems to be the worst one for discontinuation syndrome; the SNRIs are supposed to be horrid for getting off as well and I had no issues with stopping either Effexor or Cymbalta much more quickly than recommended.

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RE: Paxil and the Harm It Did Me - 4/16/2012 6:59:10 PM   
ShaharThorne


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My p-doc works with me on my depokate and geodon. We just added artane because geodon has this nice side effect of the shakes. If my hands are not shaking, my leg is. She explained the side effects (dizziness) and to take one a day for 3 days and then up it to 2 a day if needed. She has me on Ambein for my sleep and it was making me groggy the next day so I half the dosage and told her so. She thinks that was smart of me because as she puts it "You want to be active in your care, not just taking it because I said so."



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RE: Paxil and the Harm It Did Me - 4/16/2012 7:19:06 PM   
TheFireWithinMe


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quote:

ORIGINAL: angelikaJ

As I understand it, of all the SSRIS, for some reason Paxil seems to be the worst one for discontinuation syndrome; the SNRIs are supposed to be horrid for getting off as well and I had no issues with stopping either Effexor or Cymbalta much more quickly than recommended.


That's exactly what I found when I went looking because of the terrible insomnia I had right from the first day I stopped Paxil. I've actually been lucky, the worst I've had has been the occasional sensation that someone's zapping me in my calves or (bizarre) the underside of the toes of my left foot with a cattle prod. Some people report horrifying symptoms while getting off it; some actually life threatening

Fire

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RE: Paxil and the Harm It Did Me - 4/17/2012 2:00:16 AM   
LadyConstanze


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quote:

ORIGINAL: TheFireWithinMe



Yet apparently (judging by what people have written both on quitpaxil.com and in huuuuuuge numbers to the site's owner) most people aren't told about those side effects. So, like me they quit and those nasty side effects hit -literally the first day. The worst seems to be brain "zaps", which feels like an electrical current from the head to the feet.





Stupid question, isn't there an inclosure with every medication that lists all the possible side effects? I would consider it my responsibility to read as much as I can about every medication I take, just to know when something is alarming, possibly needs a doctor's attention or requires a trip to the ER. Nobody in their right mind would just swallow something like smarties because a doctor prescribed it.

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RE: Paxil and the Harm It Did Me - 4/17/2012 4:08:45 AM   
TheFireWithinMe


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According to what i've read (deliberately or not I don't know) they didn't disclose the fact that there are such very incredibly horrible side effects when stopping Paxil until 2002. I started in the mid-90s so even though I do read those sheets (which aren't always given btw) I would not have known.

Fire

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RE: Paxil and the Harm It Did Me - 4/17/2012 5:32:14 AM   
TheFireWithinMe


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By the way I just looked at the product monograph and patient information sheet. Not surprisingly although they mention the possibility of what's called Discontinuation Syndrome they state that it's generally mild-moderate in severity. Again, based on what I've been reading that is not the case; there is a fuckton of people who had/are having very severe symptoms quitting Paxil.

Granted I am using my iPhone because my laptop is being repaired but IMO they don't go far enough warning people about what they may experience if/when they quit taking Paxil.

Fire


Fire

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RE: Paxil and the Harm It Did Me - 4/17/2012 10:18:14 AM   
LadyConstanze


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Having worked in the pharmaceutical industry right after university, it's actually a legal requirement in most countries to supply you with a sheet that gives instructions, lists ingredients and tells you about side effects that could be remotely related to the medication, simply to cover their own backs, because if you take something and you're experiencing side effects, the law suits are very steep. Switch on the TV, about every other day you see a commercial by some legal company "If you were taking medication XYZ and you are now ...., call us, you might have a cause..."

Now most psycho-pharmaca are heavy duty and they will create withdrawal symptoms (they call it discontinuation because it sounds less scary) and I'm not a fan of over-prescribing them, but there are a lot of cases where they actually do help and stabilize the person, just like I am not a fan of cortisone, in some cases it helps, I don't like antibiotics because I have pretty severe reactions (takes weeks after for my digestive system to recover) but I prefer that to maybe getting gangrene from a nasty cut. Like with every medication you do have to weight the pros and cons. Also if a new medication is on the market, people need it, it helps them now - how can they know what's going to happen 10 to 40 years down the line? Of course they could wait, in the meantime, people would possibly die or suffer greatly.

I'm sorry that you had such a bad experience, but think about it the other way, maybe somebody who is so severely depressed, they consider suicide as their only option is not killing him or herself on it, which then gives the doctors a chance to work through it, find the right meds and adjust them so the person can lead a life that is as close to normal as possible - the side effects will still suck, but being dead sucks possibly even more.

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RE: Paxil and the Harm It Did Me - 4/17/2012 10:23:23 AM   
DesFIP


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quote:

ORIGINAL: angelikaJ

As I understand it, of all the SSRIS, for some reason Paxil seems to be the worst one for discontinuation syndrome; the SNRIs are supposed to be horrid for getting off as well and I had no issues with stopping either Effexor or Cymbalta much more quickly than recommended.


That's odd. The one everyone tells me is the worst is Effexor.


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RE: Paxil and the Harm It Did Me - 4/17/2012 1:28:32 PM   
littlewonder


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I don't think there is any one med that is worse than another. It's simply one med is worse for YOU than any other. Every body is different therefore one med may work better for you than another.

Take responsibility for your own health. That's all I have to say.


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