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Aylee -> RE: Parents rights (2/28/2014 7:26:26 AM)
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ORIGINAL: DomKen
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ORIGINAL: Aylee
I will note that they refused to do the most rudimentary testing to verify her past medical history, such as the MRI to confirm the childhood stroke of her brain, which was the reason she was on blood thinners and certain neurological drugs. Not to mention there are genetic tests for the markers that indicate for the DNA disease that the girl in question has.
Instead they allowed a doctor to practice outside of his field and disregard the expert opinion of doctors at his OWN hospital and impose his own diagnosis when the patient in question was NOT HIS patient.
Considering his department has done this numerous times (at least several that have been documented), I do wonder what HE or his department head has on the hospital administration, because of the tort liability they have incurred, because at least in this case the physical condition of the patient in question has noticeably deteriorated under their care.
It is enough to make you cry and to confirm that the doctors in the neurology department are criminally incompetent and that the Hospital Administrator needs to be fired.
http://www.childrenshospital.org/centers-and-services/programs/f-_-n/mitochondrial-program
quote:
Mitochondrial diseases are a large group of chronic disorders in which the body's cells have problems making energy. These disorders are relatively common.
They are also very complex, and can affect many different body systems in different combinations. As a result, a child with a mitochondrial disorder may be affected very differently than another child. Some patients' disease can be very serious, while others' may be stable and well-managed for many years.
Boston Children's Hospital's Mitochondrial Program is comprised of world experts with extensive experience diagnosing and treating children with suspected mitochondrial disorders. After a diagnosis is made, we provide the diverse expertise needed to evaluate and manage the various complications these children may face.
Here at Boston Children's, your child will be evaluated and treated by pediatric neurologist Irina Anselm, MD, who specializes in caring for children with mitochondrial diseases. Dr. Anselm works with experts from other specialties at Children's, including Metabolism, Cardiology, Genetics, Gastroenterology and Ophthalmology.
Each of these specialists has particular expertise in working with children who have mitochondrial disorders. Our doctors will work with you to develop a customized plan that manages and addresses your child's individual condition and symptoms, and we will follow your child closely throughout each stage of the treatment process.
snipt.
So the hospital has an entire program and staff now dedicated to a disease that they are on record as saying does NOT exist.
It's not that they do not exist. they definitely exist. but they are grossly over diagnosed. They are the trendy disease of the moment in some circles just like multiple chemical sensitivity was a few years back. I will point out that in all the coverage of this which specific condition she has is never mentioned and there is no such thing as just "mitochrondrial disease" that is an umbrella term for any disease involving a mutation of the DNA of the mitochondria. That could be something as mild as type 2 diabetes to all kinds of esoteric metabolic illnesses. So that generic statement does make me more than a tad suspicious.
Momma has the disease and has responded well to treatment. Older sister has the disease and has responded well to treatment. Younger sister. . . just wants something trendy?
Why would it surprise you? At least one form affects the mitochondrial DNA, which is inherited from the mother . . . it seems quite possible that two children of the same mother could inherit that form.
Testing (more accurately, sequencing and comparing) the mitochondrial DNA of both children and comparing seems feasible with current technology, no?
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