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DC Update: Weary and Waiting - 3/13/2014 5:57:59 PM   
dcnovice


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March 13, 2014
Weary and Waiting


Dear Ones ---

This epistle is brought to you by the letter W.

For days now, I’ve been haunted by a single word—weary. It perfectly sums up how I feel: physically, medically, mentally, emotionally, professionally, spiritually. (Did I miss any adverbs?) I’m tired, and tired of being tired.

But weariness is more than fatigue. Joan Chittister, a Benedictine nun and spiritual writer, put it perfectly: “Weariness is far worse than anger. Far more stultifying than mere indifference. Weariness comes from a soul whose hope has been disappointed one time too many. To be weary is not a condition of the body—that's tiredness. No, weariness is a condition of the heart that has lost the energy to care anymore.”

Aside from the usual white noise of pain and frustration, two things particularly sank my spirits lately. Last Saturday, the warm sun looked so inviting that I mustered the energy to crawl out of bed, shower, dress, and venture out. I had lunch at my beloved diner, then headed to a nearby housewares shop. Along the way, I felt an odd sensation: My right thigh was wet. Somehow the Velcro closure on my bag had come undone, and waste was pouring down my leg. That landed me in a funk I still haven’t shaken.

A few days later, I learned, in an offhand aside from my temporary co-editor, that I'd been left totally out of the loop regarding work changes that will have a huge impact on me. Indeed, my boss has yet to mention the subject to me. What little I know I've pieced together from chats with colleagues.

In my kinder moments, I try to think that my boss and co-editor have been trying to spare me from a stressful challenge. More often, I feel like I’m trapped in an All About Eve remake. At least I get to be Bette Davis! But seriously, there are times I yearn to say, “You know, folks, I’m not actually dead yet.” And yes, I know I need to talk to my boss about this, but I lack the energy or focus to do so this week.

That’s partly because today brought a medical biathlon. I saw the ostomy nurses because my stoma’s been hurting and bleeding. They looked things over, and said nothing seems to be wrong. Apparently stomata are like that. They also confirmed that I’m managing it properly and assured me that a colostomy will be an improvement.

The main event was a consultation with colorectal surgeon at Georgetown. He’s the one who cleaned me out and removed dead tissue when I was in the hospital last November, so we’re almost old friends at this point, and I feel confident in his care. I’d hoped to leave the appointment with a date for my next surgery, but my bottom is too inflamed for the doctor to operate now. And so we come to the day’s second W word—waiting.

The surgeon wants me to spend the next six or so weeks waiting and—Deo volente!—growing stronger. In late April, he’ll put me under for a good look with a scope. That will help him determine if I’m ready for what will be a big, challenging operation. I’ll also get a CT scan and talk with a plastic surgeon about the fine points of reconstructing my bottom. Fun, fun, fun. The surgery, whenever it happens, will likely include seven to ten days in the hospital with perhaps another week of recovery at home. That depends, of course, on how smoothly things go.

And that’s what I know right now. As always, many thanks and much love!

Cheers,
DC


_____________________________

No matter how cynical you become,
it's never enough to keep up.

JANE WAGNER, THE SEARCH FOR SIGNS OF
INTELLIGENT LIFE IN THE UNIVERSE
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RE: DC Update: Weary and Waiting - 3/13/2014 6:15:26 PM   
LafayetteLady


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I always look forward to your updates. I know it may seem strange, but they always act as a litttle "cheer up" for me. Not that I get pleasure from your misery. I don't at all. But your updates are uplifting to me. The dignity with which you have faced this horrible event in your life, not losing your sense of humor. And always, always you include an amazing quote from someone. I really wish you would write a book. I would buy it and recommend to everyone I know.

I can sympathize with what you went through with the bag leaking. I don't have a colostomy bag, but since I injured my back, I have to be so careful with what I eat lest I have an accident, and I have had a terrible one when not at home. I know how horrible that feels and my heart goes out to you about it. I hope you never suffer that agin while out. Not tthat home is better, but...wait, yes, if it has to happen, the privacy of our own homes is far better.

Waiting for surgery sucks for sure, but your surgeon wants to make sure that your body can handle it and I know you know that is best.

When you have the energy you will approach your boss and get things worked out. Remember that your boss and co-workers care about you (from the impression you give) and they are trying to do what is best for you, even if you feel its misguided. More stress could feasibly delay the surgery further and I'm sure you don't want that.


(in reply to dcnovice)
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RE: DC Update: Weary and Waiting - 3/13/2014 6:15:59 PM   
MistressDarkArt


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DC, believe it or not the fact that you are able to identify your feelings with terms like 'weary' and 'waiting' is a very good sign. Sometimes putting a label on feelings when nothing else seems clear or in control is a very good thing.

You've had the patience of a saint. Remember to breathe. We're here for you!

(in reply to dcnovice)
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RE: DC Update: Weary and Waiting - 3/13/2014 6:18:15 PM   
Blonderfluff


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DC. Spring is coming. That means rebirth, renewal, rejuvenate.

Here's to "r" words that will replace the "w" words.

~hugs~

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RE: DC Update: Weary and Waiting - 3/13/2014 6:26:56 PM   
shiftyw


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quote:

ORIGINAL: Blonderfluff

DC. Spring is coming. That means rebirth, renewal, rejuvenate.

Here's to "r" words that will replace the "w" words.

~hugs~



I echo this!
Best of luck and as always- well wishes!

(in reply to Blonderfluff)
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RE: DC Update: Weary and Waiting - 3/13/2014 6:31:40 PM   
DomKen


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That you are worrying about reconstruction and not chemo seems to me to be a good thing. Maybe not ideal but better than the alternative. Get strong.

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RE: DC Update: Weary and Waiting - 3/13/2014 6:47:10 PM   
LadyPact


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I've been such an ass.......

DC, I owe you a huge apology.

The cherry blossoms are coming soon. Soon, everything around you will be beautiful and fragrant. From every window, everything you see will be beautiful again.

I know you're tired. I guess I am, too. Winter is going to be over soon. Then, we'll have spring.

I hope it's ok. I told tk about you.


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RE: DC Update: Weary and Waiting - 3/13/2014 8:00:18 PM   
DesFIP


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The letter I think about in relation to you, DC, is G. For grace. Because you are an example of grace to the rest of us.

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RE: DC Update: Weary and Waiting - 3/13/2014 8:39:51 PM   
tiggerspoohbear


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Another to add to the letter W dc, Warrior. Through all this, the pain, the weariness, the surgeries, you've fought with the spirit of a Warrior. It may not feel like it to you, just remember a lot of us see that in you and are pulling for you.

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RE: DC Update: Weary and Waiting - 3/14/2014 9:31:45 AM   
hlen5


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And don't forget B for brave to share your feelings honestly and with Grace.

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RE: DC Update: Weary and Waiting - 3/15/2014 6:43:16 AM   
dcnovice


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FR

I belong to a Facebook group for folks with colorectal issues. I posted recently about how I've cried more since my diagnosis (1.31.13) than in the rest of my adult life. Most folks responded warmly and kindly, but one felt the need to preach:

I have had my ostomy for 10 years. It saved my life. I choose to get on with and enjoy and celebrate life rather than focusing on my ostomy. The sooner you get up and move on the better off you will be. An ostomy is not the end of the world it is a second chance at life. Every time I see my surgeon I thank him for giving me my life back.

I've been fiercely tempted to reply with this favorite "Downton Abbey" quote:




_____________________________

No matter how cynical you become,
it's never enough to keep up.

JANE WAGNER, THE SEARCH FOR SIGNS OF
INTELLIGENT LIFE IN THE UNIVERSE

(in reply to hlen5)
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RE: DC Update: Weary and Waiting - 3/15/2014 7:07:54 AM   
PeonForHer


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Hey DC,

I don't know what to say except . . . hang in there, old chap . . . .

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RE: DC Update: Weary and Waiting - 3/15/2014 10:06:58 AM   
needlesandpins


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DC, no-one has the right to tell you how you should handle your own stuff. I hate the emotional police telling everyone how to handle their lives. in your position, I can only hope that I could handle it all with half of what you have shown us in here.

I can only echo all the other words that the others have said.

needles

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RE: DC Update: Weary and Waiting - 3/15/2014 10:30:27 AM   
myotherself


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I have nothing more to add to what the others have already said.

You are awesome!

edited for totally unnecessary typos

< Message edited by myotherself -- 3/15/2014 10:31:33 AM >


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RE: DC Update: Weary and Waiting - 3/15/2014 11:44:07 AM   
DomKen


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quote:

ORIGINAL: dcnovice

FR

I belong to a Facebook group for folks with colorectal issues. I posted recently about how I've cried more since my diagnosis (1.31.13) than in the rest of my adult life. Most folks responded warmly and kindly, but one felt the need to preach:

I have had my ostomy for 10 years. It saved my life. I choose to get on with and enjoy and celebrate life rather than focusing on my ostomy. The sooner you get up and move on the better off you will be. An ostomy is not the end of the world it is a second chance at life. Every time I see my surgeon I thank him for giving me my life back.

I've been fiercely tempted to reply with this favorite "Downton Abbey" quote:




I get that sort of stuff when I complain in my dialysis support group too. Some people just have to be "better" than the rest of us.

(in reply to dcnovice)
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RE: DC Update: Weary and Waiting - 3/15/2014 3:17:40 PM   
TNDommeK


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Love hugs and prayers coming your way!!!!

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Our snark-nado needs more cowbell


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RE: DC Update: Weary and Waiting - 3/15/2014 3:29:36 PM   
jlf1961


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quote:

ORIGINAL: dcnovice

FR

I belong to a Facebook group for folks with colorectal issues. I posted recently about how I've cried more since my diagnosis (1.31.13) than in the rest of my adult life. Most folks responded warmly and kindly, but one felt the need to preach:

I have had my ostomy for 10 years. It saved my life. I choose to get on with and enjoy and celebrate life rather than focusing on my ostomy. The sooner you get up and move on the better off you will be. An ostomy is not the end of the world it is a second chance at life. Every time I see my surgeon I thank him for giving me my life back.

I've been fiercely tempted to reply with this favorite "Downton Abbey" quote:





Give it to them DC, but might I suggest a followup with a brick?

_____________________________

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(in reply to dcnovice)
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RE: DC Update: Weary and Waiting - 3/15/2014 3:52:52 PM   
LafayetteLady


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I mentioned this to another poster suffering from cancer recently when someone made a comment about her being vain (she mentioned it on some other thread). Some people feel they need to wear their disease like some sort of badge of courage. Fighting and beating any insideous disease isn't about couragee, because you aren't given a choice to walk away.

You fight because you have to. As you said, DC, it can cause great weariness. The only ones who I don't have patience for is those who constantly whine, "why me?" It does no good. Sure we all have those moments, and we need to momentarily embrace that despair, cry, scream, whine and curse. Then let it go, get back up and move on with the fight.

Personally, I think that guy in that facebook group is an idiot. He dealt with his disease his way, you are dealing with it your way. His way seems geared toward making someone else feel diminished if they aren't like him. Your way has shown all of us all the sides you have faced in this battle; the fear, the small triumphs and the big ones, the exhaustion and the solitary inner strength you possess

Hlen said it best. You have fought this battle and continue to do so with GRACE. And a lot of humor. I feel blessed to have been able to read your struggles and victories.

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RE: DC Update: Weary and Waiting - 3/15/2014 4:08:03 PM   
dcnovice


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quote:

The only ones who I don't have patience for is those who constantly whine, "why me?"


Funny you should mention that. This was my Facebook update just before bed last night:

As I settle into year two of the apparently endless oncology adventure, it strikes me that the real question isn't, and never has been, "Why me?" Those are two words I've tried very hard never to utter. Rather, as I hear tales from others trudging their own painscapes, the true heart-breaker is "Why anyone?"

_____________________________

No matter how cynical you become,
it's never enough to keep up.

JANE WAGNER, THE SEARCH FOR SIGNS OF
INTELLIGENT LIFE IN THE UNIVERSE

(in reply to LafayetteLady)
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RE: DC Update: Weary and Waiting - 3/15/2014 4:14:46 PM   
LafayetteLady


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So you prove all our points regarding your absolute grace and dignity.

But you know what? I wouldn't blame you one bit if you had "why me" moments.

(in reply to dcnovice)
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