Collarspace Discussion Forums


Home  Login  Search 

Over stimulation with pain, causes Fibro?


View related threads: (in this forum | in all forums)

Logged in as: Guest
 
All Forums >> [Casual Banter] >> Off the Grid >> Over stimulation with pain, causes Fibro? Page: [1] 2 3   next >   >>
Login
Message << Older Topic   Newer Topic >>
Over stimulation with pain, causes Fibro? - 7/5/2011 11:39:22 AM   
AlwaysLisa


Posts: 1088
Joined: 10/6/2006
From: Washington State
Status: offline 		In light of another thread where Fibromyalgia was a key factor, I am bringing my query here, rather then have the previous thread veer left too far.

We heard the name Fibromyalgia when doctors were trying to diagnose my husbands severe pain, it seemed an easy answer, all the signs were there.   When his GP told us that Fibro is not real, it's just a condition, they don't know where it comes from and basically she indicated it was all "in the patients head"....we found a new doctor, post haste.   As it turns out, the diagnosis was totally wrong, but I did read a bit about this disease. 

From the Mayo Clinic: 

Doctors don't know what causes fibromyalgia, but it most likely involves a variety of factors working together. These may include:
  • Genetics. Because fibromyalgia tends to run in families, there may be certain genetic mutations that may make you more susceptible to developing the disorder.
  • Infections. Some illnesses appear to trigger or aggravate fibromyalgia.
  • Physical or emotional trauma. Post-traumatic stress disorder has been linked to fibromyalgia.
Why does it hurt?
Current thinking centers around a theory called central sensitization. This theory states that people with fibromyalgia have a lower threshold for pain because of increased sensitivity in the brain to pain signals. Researchers believe repeated nerve stimulation causes the brains of people with fibromyalgia to change. This change involves an abnormal increase in levels of certain chemicals in the brain that signal pain (neurotransmitters). In addition, the brain's pain receptors seem to develop a sort of memory of the pain and become more sensitive, meaning they can overreact to pain signals.



Ok...so they admit it's real!   Now for the reason I am posting here, on a BDSM forum.   Do you think that play sessions can aid in setting a person up to create this?   If the pain receptors are a big part and basically they are over reacting, perhaps the stimulus that is involved with BDSM, coupled with added stress in the person's world, causes Fibro to develop?

Everyone deals with stress differently, some are better at it then others.  If that sets things in motion, followed by anything that causes the body pain, it sure sounds like the combination could be a very large factor.   How many people do you know, involved in any form of BDSM, that are suffering with this disease?   I can count 5, and I am by no means active, just folks I talk to here and there.   I can't really ask my husbands doctor, but curious minds and all that.....




_____________________________

Just an old flower child, trying to survive in today's chaos and confusion.
Profile   Post #: 1
RE: Over stimulation with pain, causes Fibro? - 7/5/2011 11:50:17 AM   
tazzygirl


Posts: 37833
Joined: 10/12/2007
Status: offline 		Its very real. What I do today, I will feel tomorrow... and the day after... and potentially the day after that.

When I was first diagnosed... 15 years ago... I was told it was a connective tissue disorder aggravated by lack of sleep. What he told me made sense. I didnt get enough REM sleep, which is the time the body takes to heal those little rips and tears that we all do to muscles, tendons and ligaments every day. We are speaking of just from general use. The body needs time to heal. Because I wasnt getting enough REM sleep, my body was not healing itself, and the pain was just being compounded daily. I can tell when I dont get enough sleep... I ache all over. Pain medication doesnt help relieve that pain. The only thing that helps si sleep.

I am in no way suggesting science is wrong, or that my condition is the same as anyone else. I continue with the pressure point pain. Binxie can walk across my legs, or lay on my hip, and I simply want to cry because an 8 lb cat hits a tender spot. I do think its more than just one problem. Possibly more than two problems. I find its also a problem few Drs want to treat with any kind of compassion.

Just my two cents.

_____________________________

Telling me to take Midol wont help your butthurt.
RIP, my demon-child 5-16-11
Duchess of Dissent 1
Dont judge me because I sin differently than you.
If you want it sugar coated, dont ask me what i think! It would violate TOS.

(in reply to AlwaysLisa)
Profile   Post #: 2
RE: Over stimulation with pain, causes Fibro? - 7/5/2011 11:58:41 AM   
LadyHibiscus


Posts: 27124
Joined: 8/15/2005
From: Island Of Misfit Toys
Status: offline 		Fibro is some strange, and it seems different for everyone who has it. I refuse to accept any such diagnosis for myself, but I have terrible skin sensitivity, where someone brushing against me is horribly painful, more than if someone punched me. Massage is RIGHT OUT, I am smothering screams. No idea how folks with fibro do play, but I know some who find impact play very soothing.

_____________________________

[page 23 girl]



(in reply to tazzygirl)
Profile   Post #: 3
RE: Over stimulation with pain, causes Fibro? - 7/5/2011 12:01:58 PM   
AlwaysLisa


Posts: 1088
Joined: 10/6/2006
From: Washington State
Status: offline 		Probably, because it is such a personalized affliction, doctors can't admit it is real.  Or at least some doctors.  The over stimulation of pain comment caught my attention from the Mayo.  That and stress.   I think we are just now finding out how much stress effects us. 

*side note....Binxie?  As in...Hocus Pocus, Binx?  



_____________________________

Just an old flower child, trying to survive in today's chaos and confusion.

(in reply to tazzygirl)
Profile   Post #: 4
RE: Over stimulation with pain, causes Fibro? - 7/5/2011 12:07:22 PM   
tazzygirl


Posts: 37833
Joined: 10/12/2007
Status: offline 		LOL

As in one of the "Mistresses". Apparently the man got her and took one look, decided she was a Binxie... and that was that.

But your analogy would work. He insists she is a "Disney" princess and expects to be treated as such.

_____________________________

Telling me to take Midol wont help your butthurt.
RIP, my demon-child 5-16-11
Duchess of Dissent 1
Dont judge me because I sin differently than you.
If you want it sugar coated, dont ask me what i think! It would violate TOS.

(in reply to AlwaysLisa)
Profile   Post #: 5
RE: Over stimulation with pain, causes Fibro? - 7/5/2011 12:15:29 PM   
DomKen


Posts: 19457
Joined: 7/4/2004
From: Chicago, IL
Status: offline 		I think people are misunderstanding. Doctors have looked long and hard for something physical going on and so far they have found nothing. The current theory is that it is a pyschosomatic illness. IOW fibromyalgia might be a condition relating to the functioning of the brain, perhaps a poor stress response. That doesn't mean the pain isn't real, it just means there doesn't appear to be anything happening where the pain is perceived but that instead the sensation of pain etc. if coming from inside the brain.

It most certainly isn't meant to imply that the condition is faked or that those with it need to "suck it up" or other nonsense.

SNRI's (a form of anti depressant) have shown significant positive effect in treating fibromyalgia.

(in reply to AlwaysLisa)
Profile   Post #: 6
RE: Over stimulation with pain, causes Fibro? - 7/5/2011 12:51:18 PM   
kalikshama


Posts: 14805
Joined: 8/8/2010
Status: offline 		I have a similar condition, in which my body overreacts to chemicals that don't bother most people like perfumes, scented laundry detergent, and many petroleum-based products. A SPECT brain scan showed hyper-perfusion in 4 areas of my brain in response to chemicals. This happened after I worked for two years in a building that turned out to have toxic mold.

There's a lot of overlap - if any of you fibro people want to discuss chemicals, I'm here!

http://www.mcsrr.org/factsheets/overlaping.html

FMS is defined by chronic muscle and joint pain on both sides of the body, pain above and below the waist, and pain anywhere along the spine. It is usually associated with disrupted sleep, chronic fatigue, cognitive problems, and many other variable symptoms. According to the American College of Rheumatology, FMS affects about 3% of the adult U.S. population and, like CFS and MCS, is much more common in women. The diagnosis is confirmed with a brief physical exam that involves the testing of 18 pressure (or tender) points. As with CFS and MCS, the onset of FMS may be gradual or sudden. Sudden onset is usually associated with physical injury or trauma, such as a car accident or difficult childbirth, although FMS also may be initiated by infections or chemical and drug exposures. Treatments focus on relieving pain, avoiding stress, improving sleep and correcting hormonal imbalances. Outcomes vary and no cure-all is known.

CFS, FMS and MCS occur together in approximately 1/3 to 2/3 of all cases, according to the first study of this overlap done in 1994. The MCS overlap was perfectly symmetrical, with up to 67% of both CFS and FMS patients reporting a worsening of symptoms following exposure to air pollution, cigarette smoke, solvent fumes or perfumes. The FMS overlap also appears symmetrical, with 67% of both MCS and CFS patients reporting muscle weakness and 63% to 77% complaining of muscle and joint pain. And despite using an older (1988) and narrower definition of CFS, the study found CFS in 70% of FMS and 30% of MCS patients. Using the broader 1994 criteria for CFS, the overlap is much greater: a study of 100 new MCS patients found 88% also had CFS, 49% had FMS and 47% had all three! These extensive overlaps highlight the need to screen patients for all three disorders whenever any one is suspected.

It is very important that anyone suspected of having any one of these overlapping syndromes be screened for all of the others as well as for other possible underlying complications and causes of their symptoms such as inherited mast cell or porphyrin disorders. Failure to do a thorough differential diagnosis may have serious consequences, as health care providers may overlook potentially treatable conditions that present with similar symptoms or recommend inappropriate treatments. Since drug sensitivities are common in all these disorders, for example, physicians who prescribe medications for CFS/FMS/MCS patients are advised to start at way below the normal dose and increase slowly only if it is well tolerated. Thorough documentation of all signs, symptoms and diagnoses also is critical for patients seeking workplace accommodation or workers' compensation, Social Security and other disability benefits, or insurance coverage.

For additional information on the diagnosis and treatment of these overlapping disorders and referral services, please contact the following national organizations:

(in reply to AlwaysLisa)
Profile   Post #: 7
RE: Over stimulation with pain, causes Fibro? - 7/5/2011 2:00:06 PM   
LinnaeaBorealis


Posts: 8595
Joined: 10/5/2008
From: Insanity & beyond
Status: offline 		I've had chronic pain for more than 25 years now, ever since being run over by that car & sustaining 8 fractures at once. Then I broke a lot more bones over the years. And in 2004 it was discovered that I have arthritis, & by now it's pretty much everywhere. I have the pressure point thing, but have a pretty high pain tolerance of other types of pain. I found that the SNRI's help the arthritis pain a lot. Unfortunately right now I have no prescription drug coverage & they cost a whole lot. So right now I'm taking Norco for the pain & getting steroid injections.

I've often wondered about the correlation between fibro & BDSM myself, as I've seen a fair number of submissive women who post who have it. My last Dr said I didn't have it, that I was really just fat & out of shape. And it seemed that she was correct because when I lost 50 lbs my pain was minimal. Not sure if I have it or if knowing that I do would be helpful. But the thoughts in the OP are very interesting indeed. I wonder if there have ever been any studies about a connection?

_____________________________

Ring the bells that still can ring
Forget your perfect offering
There is a crack in everything
That's how the light gets in
~~L. Cohen

Just one of the yahoo's

(in reply to kalikshama)
Profile   Post #: 8
RE: Over stimulation with pain, causes Fibro? - 7/5/2011 3:09:35 PM   
DesFIP


Posts: 25191
Joined: 11/25/2007
From: Apple County NY
Status: offline 		I knew a woman with fibromyalgia whose daughter couldn't feel pain. It seemed obvious that in her family there's something wrong with pain processing, one over processes and one under processes. But that the two conditions were opposite ends of the same spectrum.

_____________________________

Slave to laundry

Cynical and proud of it!


(in reply to LinnaeaBorealis)
Profile   Post #: 9
RE: Over stimulation with pain, causes Fibro? - 7/5/2011 3:19:28 PM   
LinnaeaBorealis


Posts: 8595
Joined: 10/5/2008
From: Insanity & beyond
Status: offline 		I've had an odd relationship with pain, but I sorta thought it was part of the Asperger's. I would have slept through the birth of my first baby had it not been for the nurses hearing me grunt as I pushed. And when I broke my wrist, I argued with the diagnosis & wasn't going to go see anyone about it in spite of the bump on it. I walked a couple of months on a badly broken foot before I finally sought out a specialist because it didn't seem to be getting better. She told me it was broken & to get off of it & it took 8 months to heal completely.

But on the other hand, sometimes a touch can hurt tremendously. The cat's paw in certain places is excruciating. So I never know where to place my pain on a scale. Most of the time I just ask myself if it hurts as much as getting run over by a car & if the answer is no, I will pretty much just carry on. Unfortunately, with my skewed pain perception, that's not always the best thing to do.

_____________________________

Ring the bells that still can ring
Forget your perfect offering
There is a crack in everything
That's how the light gets in
~~L. Cohen

Just one of the yahoo's

(in reply to DesFIP)
Profile   Post #: 10
RE: Over stimulation with pain, causes Fibro? - 7/5/2011 4:20:34 PM   
AlwaysLisa


Posts: 1088
Joined: 10/6/2006
From: Washington State
Status: offline
quote:

I have a similar condition, in which my body overreacts to chemicals that don't bother most people like perfumes, scented laundry detergent, and many petroleum-based products. A SPECT brain scan showed hyper-perfusion in 4 areas of my brain in response to chemicals. This happened after I worked for two years in a building that turned out to have toxic mold.


OMG...kalikshama,

I thought it was just me.  No makeup, perfume, lotions etc.   Just last week, I tried a new fabric softener, within an hour of wearing the clothing, I had a migraine type headache, nausea, dizziness and the tip of my tongue tasted metallic.   No one else could smell this aroma, nor was effected by it.   Nothing like pouring out a full bottle!   My husband thinks Im nuts some days (well, more then some days if truth be told)....I wind up out of commission after scrubbing the floor with 409, with all the above symptoms.  

Topical ointments, of any kind, but pain relief gels are the worst.   I deal with pain, rather then the reactions.  I had no idea there were others, lol    I chalked it up to years of inhaling gardening dust and spray, figured it was just finally at a level in my body that was permanently toxic! 

Thank you for sharing the info, I'm off to read more :)

Lisa


_____________________________

Just an old flower child, trying to survive in today's chaos and confusion.

(in reply to kalikshama)
Profile   Post #: 11
RE: Over stimulation with pain, causes Fibro? - 7/5/2011 6:31:07 PM   
Phoenixpower


Posts: 8098
Status: offline
quote:

ORIGINAL: DomKen

I think people are misunderstanding. Doctors have looked long and hard for something physical going on and so far they have found nothing.


Thats actually not correct anymore as I read recently...will get back to that later this week, but they finally start to find their physical evidence as I read in a GP file about FMS...

< Message edited by Phoenixpower -- 7/5/2011 6:32:22 PM >

_____________________________

RIP 08-09-07

The PAST is history, the FUTURE a mystery, NOW is a gift - that's why it's called the PRESENT

www.butyoudontlooksick.com/navigation/BYDLS-TheSpoonTheory.pdf

(in reply to DomKen)
Profile   Post #: 12
RE: Over stimulation with pain, causes Fibro? - 7/5/2011 6:41:02 PM   
Tantriqu


Posts: 2026
Joined: 12/29/2006
Status: offline 		Nonsense that it's 'not physical' or 'doctors don't know what it is'! They've known for decades it's caused by stress and/or chronic pain, and the pain triggerpoints are the insertion points of tendons. The GOOD news is it's not a degenerative disease like arthritis.
The more pain, the tighter. Trouble is, a lot of people can't get out of the cycle [or psychle] of pain/less exercise/more pain/no exercise/more pain. A lot of people can't push themselves to exercise, and get depressed. Physiotherapy and exercise are the only non-drug ways out. If stress is causing the muscle tension, gotta get rid of the stress and/or take anti-depressants.

(in reply to Phoenixpower)
Profile   Post #: 13
RE: Over stimulation with pain, causes Fibro? - 7/5/2011 6:50:58 PM   
AlwaysLisa


Posts: 1088
Joined: 10/6/2006
From: Washington State
Status: offline 		Not all doctors Tantriqu are accepting the findings, as we personally discovered.  It takes a doctor with a willingness to learn new things and broaden their horizons. 






_____________________________

Just an old flower child, trying to survive in today's chaos and confusion.

(in reply to Tantriqu)
Profile   Post #: 14
RE: Over stimulation with pain, causes Fibro? - 7/5/2011 7:04:56 PM   
pahunkboy


Posts: 33061
Joined: 2/26/2006
From: Central Pennsylvania
Status: offline 		It comes from too many vaccinations.   



(in reply to AlwaysLisa)
Profile   Post #: 15
RE: Over stimulation with pain, causes Fibro? - 7/5/2011 7:22:11 PM   
kalikshama


Posts: 14805
Joined: 8/8/2010
Status: offline
quote:

I thought it was just me.  No makeup, perfume, lotions etc.   Just last week, I tried a new fabric softener, within an hour of wearing the clothing, I had a migraine type headache, nausea, dizziness and the tip of my tongue tasted metallic.   No one else could smell this aroma, nor was effected by it.   Nothing like pouring out a full bottle!   My husband thinks Im nuts some days (well, more then some days if truth be told)....I wind up out of commission after scrubbing the floor with 409, with all the above symptoms.  


When people insinuate that I'm crazy I reply that it IS all in my head...and I have the SPECT brain scan to prove it.

Check this out: Chemicals Found in Fabric Softeners/Dryer Sheets

I don't use any "normal" cleaning products. Clorox makes a "green" line which is a little better, but brands like Seventh Generation (carried at Target and Whole Foods) are even better for me.

For laundry detergent, just about all of the brands have a fragrance-free version now.

Prevalence Studies [of people sensitive to chemicals]

"In summary, studies report the prevalence of feeling ill after exposure to chemicals or being sensitive to chemicals, but not necessarily having MCS, ranges from 15 to 37 percent."

(in reply to AlwaysLisa)
Profile   Post #: 16
RE: Over stimulation with pain, causes Fibro? - 7/5/2011 7:34:02 PM   
kalikshama


Posts: 14805
Joined: 8/8/2010
Status: offline
quote:

ORIGINAL: AlwaysLisa

Not all doctors Tantriqu are accepting the findings, as we personally discovered.  It takes a doctor with a willingness to learn new things and broaden their horizons. 


I was very lucky that when I sought a doctor after realizing that being chronically ill was not normal but due to the mold in the building, the doctor I found specialized in Environmental Illness.

(in reply to AlwaysLisa)
Profile   Post #: 17
RE: Over stimulation with pain, causes Fibro? - 7/5/2011 9:02:09 PM   
DomKen


Posts: 19457
Joined: 7/4/2004
From: Chicago, IL
Status: offline
quote:

ORIGINAL: Tantriqu

Nonsense that it's 'not physical' or 'doctors don't know what it is'! They've known for decades it's caused by stress and/or chronic pain, and the pain triggerpoints are the insertion points of tendons. The GOOD news is it's not a degenerative disease like arthritis.

I keep fairly up to date on the science of such and I have never seen anything showing anything physical going on in fibro. If you know of such a paper please link it.

(in reply to Tantriqu)
Profile   Post #: 18
RE: Over stimulation with pain, causes Fibro? - 7/5/2011 9:18:50 PM   
tazzygirl


Posts: 37833
Joined: 10/12/2007
Status: offline 		What you are saying is that its all in the mind?

_____________________________

Telling me to take Midol wont help your butthurt.
RIP, my demon-child 5-16-11
Duchess of Dissent 1
Dont judge me because I sin differently than you.
If you want it sugar coated, dont ask me what i think! It would violate TOS.

(in reply to DomKen)
Profile   Post #: 19
RE: Over stimulation with pain, causes Fibro? - 7/5/2011 9:47:16 PM   
tammystarm


Posts: 3045
Joined: 7/26/2006
Status: offline 		Fibro is real. Trauma whether emotionally physically or mentally triggers what may already be there (hence genetics). Believe me I went from being at the top of my game, a constantly booked massage therapist to being in the bed in tears and using a cane, many many trips to the ER. I refused to believe it all, I thought there had to be something more. To this day when some new and weird thing happens to my body I think once again, there must be something more. The reason for this thought, is as it has been said SUPPOSEDLY its all in our minds! Well, fuck that!!!!! And on the subject i hate hearing that i have (shhhhh) depression, O NO! Yeah well who in the hell wouldnt if your in constant pain, new and weird ones, and things are constantly on a rollar coster on the mental physical and emotional level. All the stigma from it makes me sick literally and figurately! God bless those who suffer, who cannot talk to anyone about it, because its all in your head (URRRRR!) no one seems to understand (yeah i know waaah waaah waaah). I have went the alternative route, with accupuncture, chiroprators, herbs, aromatherapy, massage, tens units, baths, and on and on and on. Then i was forced (ok not exactly forced, more like being brain washed at a very sensitive time) to take handfuls of med, fucking wonderful. Except they only mask the issues, let ya get up (carefully!) and make it through the day, but still in alot of pain.....ridiculous etc. Ok off the gravy train of waaah poor me. Always here however to listen to anyone who has the unfortunate luck to get this fantabulous condition.


_____________________________

~~Queen of duct-tape~~
~~Emotionally delusional~~

~~somebody pour me my nebuitol and hand me my drink~~



(in reply to tazzygirl)
Profile   Post #: 20
Page:   [1] 2 3   next >   >>
All Forums >> [Casual Banter] >> Off the Grid >> Over stimulation with pain, causes Fibro? Page: [1] 2 3   next >   >>
Jump to:





New Messages No New Messages
Hot Topic w/ New Messages Hot Topic w/o New Messages
Locked w/ New Messages Locked w/o New Messages
 Post New Thread
 Reply to Message
 Post New Poll
 Submit Vote
 Delete My Own Post
 Delete My Own Thread
 Rate Posts




Collarchat.com © 2025
Terms of Service Privacy Policy Spam Policy

0.094