BitaTruble
Posts: 9779
Joined: 1/12/2006 From: Texas Status: offline
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quote:
ORIGINAL: tazzygirl Standards of care, which is what every physician and medical center operates under, indicates birth control and NSAIDs as first line. There are also women for whom a hysto is not a viable alternative because of other issues. In my case, I also have an abnormal immune system as well as abnormal CD44 proteins and my endo was diagnosed so late that I had already developed scar tissue fusing my bladder to my uterus (and my ovary to my pelvic wall.. etc., etc) which is why laps never totally helped alleviate my pain. When I was finally diagnosed the damage was done and I've been living with it ever since. My strands run from my left kidney, engulf my left ovary, down the pelvic wall and are secured and fused to my bladder. On the other side, it's not as bad but my right ovary is connected to the pelvic wall and down to the bladder as well. The biggest issue is actually not the kidney, but the bladder. The organ is so delicate that docs just don't want the liability for performing surgery on it for this issue. As I'm sure you know (but others have made it clear they don't) there is no cure for endo. There is only treatment and BCPs are, in my case, the only option I have at this point. I was hoping that once I was done going through the 'change' that my endo would become a non-issue (as it is in the case of 95% of women who have it) but my scars are so bad that even though I'm all changed now.. I still get the endo pain. But, I'm ever the optimist and my motto is and has been "enjoy the pain while you have it and remember it fondly when it's gone." We maso's are really a weird bunch.
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"Oh, so it's just like Rock, paper, scissors." He laughed. "You are the wisest woman I know."
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