RE: court forces brain radiation on child (Full Version)

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Aswad -> RE: court forces brain radiation on child (12/25/2012 4:56:59 PM)

quote:

ORIGINAL: epiphiny43

Few fathers 'surrender' custody, and certainly not parental rights.


Primary custody. And, yes, most fathers surrender once the courts have made their decision.

quote:

Parents who chose death against medical advice for whatever reason have to answer to the other parent and the state.


"Choose not to prevent death", you mean, and in the presence of a substantial risk element.

Leaving aside this specific case, let's say the reason was the simple position that it's better to die as who you are than to be changed to gain some years. That's a clear value judgment question, and those should be for the parents to decide, or in the case of a single parent with primary custody, the decision of the one with primary custody. It's crossing a line to impose the consensus values of the State on all citizens, and this case falls in that same domain by indistinguishability. Not that I think it's particularly easy to distinguish valid and invalid reasons for making a value judgment (including partial value judgments or judgments where values participate in the conclusion).

quote:

US case law is pretty clear on parents right to choose death.


Good on the US, as on many points.

quote:

The arguments in the thread about 5 year survival are specious. 5 year survival is a key medical metric for cancer treatments and considered a major success to achieve. Total remission is much better!


I've yet to see solid statistics, and those I've seen indicate a marginal difference between resection and radiotherapy in outcomes for a subtotally resected grade 4 medulloblastoma, where five year rates in a 7 year old are 0% with no treatment, 20% with resection and 30% with radiotherapy, again according to those statistics. Total remission is unrealistic due to the metastatic and invasive nature of the cancer in question (these are mobile glial cells, in direct contact with the CSF, with low adhesion).

If you know more about the specific diagnosis and/or have better statistics, I'm interested in hearing it.

An argument could be made that forcing resection was reasonable, given the certain death outcome without it and the plausible survival with it, but we're talking here about the radiotherapy after resection, to improve the odds. If forcing the resection was reasonable, then the odds are already way better than certain death, and a chance of further improvement at further risk is a tradeoff I prefer for parents to make.

Incidentally, photodynamic therapy, which the doctors wrote off as last ditch attempts for the dying is considered fairly routine treatment for medulloblastoma here, and the preferred treatment modality for some patient groups, among other things due to significantly reduced side effects relative to radiotherapy, with only slightly worse prospects. Though pediatric use is less common, that's because it's harder to get permission before it's become the conventional treatment for that patient group, not because it's inferior to conventional treatment (it apparently isn't).

In cases with subtotal resection or recurrence, photodynamic therapy may well be the better tradeoff.

IWYW,
— Aswad.




Aswad -> RE: court forces brain radiation on child (12/25/2012 5:03:35 PM)

quote:

ORIGINAL: Moonhead

You're obviously chopping logic purely to support the mother's position as being morally correct,


The mother's position isn't my position, nor does it appear to be morally correct, or particularly sound.

You're obviously not grasping what my position- or my logic- are about here, which is the State.

Quod licet bovi, non licet Jovi, rather than the traditional opposite.

IWYW,
— Aswad.




cordeliasub -> RE: court forces brain radiation on child (12/25/2012 5:13:56 PM)

I have had radiation on my brain as well as radiosurgery. It does not cause mental retardation. There is some risk, as there is with any surgery - but no, there is no causation of mental retardation. The instruments used for this kind of procedure are highly specific. Actually, since the removal of my tumor through radiosuregery, I am functioning BETTER mentally than I have in a long time.

I am not a fan of the state intervening in parental decisions, but the whole "radiation will make him retarded" thing is inaccurate, so I thought I'd speak from actual personal experience.

This is one of those stories where the half stories and knee jerk reactions of third hand tellings can just become......crazy.




Aswad -> RE: court forces brain radiation on child (12/25/2012 5:47:02 PM)

quote:

ORIGINAL: tazzygirl

With parental rights does come a form of ownership, no matter how much people dont wish to admit that.


The child isn't independent, but quite simply very dependent, and for practical purposes indeed owned by someone, though the law doesn't define it in those terms. As you say, it's something some don't want to admit. I can't close my eyes to it, however. And I'm a lot more comfortable with the parents "owning" the child than the State "owning" the child. The State can uphold the laws against killing and the like, but not behave as if it's the parent, or as if it's got ownership of the child, or any citizen; that's what I think on this subject.

quote:

I think the only times a court should step in and disrupt that arangement is when the child is abused.. either through neglect (passive) or active abuse.


Pragmatically speaking, if the child is abused through neglect, in a nonlethal manner, then the child is so screwed that whatever you can salvage isn't worth the possibility of intervention in cases where the child wasn't actually abused. Work with what you have and what you can save, not with what you want to avoid.

quote:

Parents refusing treatments is a grey area.


In my view, so long as the parents didn't intentionally cause the illness, others have no business forcing anything on them.

quote:

We arent talking about blood transfusions, diabetes, pneumonia or an appendectomy - all of which have treatments with a very low rate of harmful effects.


Yeah, there's some serious issues with whole brain irradiation at age 7:

The National Cancer Institute puts the conventional dosage at 35Gy whole brain, plus 55Gy locally to the posterior fossa.

The onset of long term mild cognitive dysfunction is somewhere around 20Gy (no effects apparent below 10Gy), while at 30Gy or so, mild cognitive function is immediately apparent in half the cases. At 40Gy, severe long term cognitive dysfunction (frank retardation) occurs in half the cases; from mild to moderate dysfunction occurs immediately, settles on modest dysfunction and then worsens up to adulthood. I note that the typical dose is somewhat short of what tends to cause frank retardation, and that these kids tend to die before they reach an age where the full extent of the damage has been realized.

And this notion that there's a "slight risk" of brain damage is patently absurd. What we're dealing with, is dose related brain damage and a dose that is established to always cause some brain damage, but which usually doesn't cause frank retardation in the life expectancy of a child with that condition. It's "how much", not "if". Also, the 80% five year survival rate noted by the doctors is for combined successful resection, radiotherapy and long term chemotherapy, not for a bungled resection (or, worse, immediate recurrence as they claimed) and radio without chemo.

That's not what I'd consider an easy call to make, and not one I'd be inclined to deprive the parents of.

IWYW,
— Aswad.




Aswad -> RE: court forces brain radiation on child (12/25/2012 5:48:54 PM)

quote:

ORIGINAL: Moonhead

If the parent isn't competent to do the job, what the fuck else do we have a state for in the first place?


As a collective of citizens banding together to secure liberty for themselves, and to perpetuate liberty for all citizens.

That's the only justification for a State, in my opinion, but there's nice stuff you can do once you have one.

Course, most of the nice stuff, you can also do without one.

IWYW,
— Aswad.




Aswad -> RE: court forces brain radiation on child (12/25/2012 5:50:58 PM)

quote:

ORIGINAL: Politesub53

I maintain my stance my friend (You expected no less lol)


This is true, friend.

quote:

The rights/liberty of the child, overrule the rights of the parents, in my opinion.


I appreciate the sentiment, much as I disagree with empowering the State to that extent.

At least, in my view, though erring, they're erring in a reasonably benign and well intentioned manner; that's something. [:)]

IWYW,
— Aswad.




Aswad -> RE: court forces brain radiation on child (12/25/2012 5:58:17 PM)

quote:

ORIGINAL: cordeliasub

I have had radiation on my brain as well as radiosurgery.


At age 7?

quote:

It does not cause mental retardation.


Do you have some studies to back up that it doesn't cause cognitive impairment in children?

If you had it as an adult, that's incomparable. If you had it as a child, you've no idea how you might've turned out.

quote:

The instruments used for this kind of procedure are highly specific.


I'm quite familiar with the instruments. They're breathtakingly impressive to me, as an engineer. They're also not miracles.

quote:

Actually, since the removal of my tumor through radiosuregery, I am functioning BETTER mentally than I have in a long time.


I'm glad to hear it. That said, I should think such was part of the point.

quote:

I am not a fan of the state intervening in parental decisions, but the whole "radiation will make him retarded" thing is inaccurate, so I thought I'd speak from actual personal experience.


I appreciate that. Thank you.

I'm just saying that it takes population level comparative studies to say this for sure.

The two studies I read say children develop mild cognitive dysfunction at 20Gy (50% incidence) and frank retardation at 40Gy (again 50% incidence; this for whole brain 40Gy). The therapy in question is 35Gy whole brain, 55Gy local. The dysfunction matures years later, so the kids won't usually live to see the full blown result.

quote:

This is one of those stories where the half stories and knee jerk reactions of third hand tellings can just become......crazy.


I agree. If you have better data than those I have read, I'm open to reading them.

I'm not saying this kid will become retarded by a stroke of magic.

I'm saying some cognitive impairment is common.

IWYW,
— Aswad.




tazzygirl -> RE: court forces brain radiation on child (12/25/2012 6:16:43 PM)

quote:

Pragmatically speaking, if the child is abused through neglect, in a nonlethal manner, then the child is so screwed that whatever you can salvage isn't worth the possibility of intervention in cases where the child wasn't actually abused. Work with what you have and what you can save, not with what you want to avoid.


I disagree. All depends on when someone steps in. Its still my belief that of a child has the ability to draw a breath, abuse should be stopped the moment its discovered. Nonlethal abuse can be emotional neglect, daily beatings, ect.

quote:

In my view, so long as the parents didn't intentionally cause the illness, others have no business forcing anything on them.


Very few have "intentional illnesses" caused. Lack of treatment can "cause" just as much damage. Then we move into the religious reasons why someone doesnt want Johnny to get a blood transplant. Thats just not a good enough excuse not to save a child.

quote:

And this notion that there's a "slight risk" of brain damage is patently absurd. What we're dealing with, is dose related brain damage and a dose that is established to always cause some brain damage, but which usually doesn't cause frank retardation in the life expectancy of a child with that condition. It's "how much", not "if". Also, the 80% five year survival rate noted by the doctors is for combined successful resection, radiotherapy and long term chemotherapy, not for a bungled resection (or, worse, immediate recurrence as they claimed) and radio without chemo.

That's not what I'd consider an easy call to make, and not one I'd be inclined to deprive the parents of.


I do hope you are not under the impression that I disagree with your stand on the irradiation. I believe its in his best interest, medically.

I also know that many parents get so bogged down by "advice" from lay people.. and.. frankly.. shysters... coupled with the fear of what is now happening to their "perfect child" .... that its easy to see how they would be swayed from something so foreign sounding. Which is why they need a representative all their own.




thishereboi -> RE: court forces brain radiation on child (12/25/2012 6:32:26 PM)

quote:

ORIGINAL: MAINEiacMISTRESS


quote:

ORIGINAL: epiphiny43


quote:

ORIGINAL: Aswad

quote:

ORIGINAL: Moonhead

The only reason the courts are involved is because she has custody so the father has had to go through them to try to get radiotherapy for the kid. Hence, she's actively blocking that happening, hence your comment about a lack of any casual connection is nonsense.


In other words, the father tries to interfere with the baseline causal chain. The baseline causal chain is okay. The father has no role in that one, because he surrendered primary custody. She fights him on the interference. If unsuccessful, we would have gotten to a derived causal chain that she has been bumped out of. If successful, we're back to the baseline, which was okay in the first place. Either way, it's iffy to pin that on her, IMO.

IWYW,
— Aswad.


I don't think so. Few fathers 'surrender' custody, and certainly not parental rights. The 'causal chain' in a predictably fatal disease with any chance of treatment is for the advice of the attending health care professionals to be followed. Parents who chose death against medical advice for whatever reason have to answer to the other parent and the state. Their arguments carry weight, 'custody' doesn't remove all other interested parties, particularly when the choice is for a quick and very predictable death.
US case law is pretty clear on parents right to choose death. The various religions that abhor blood transfusions are frequently screaming about parental and religions freedoms, while a nurse with a court order saves their child from death with a few minute procedure.
As the prognosis becomes less clear, the difficulty of making the right distinction on rights and life itself becomes more difficult. This case is exactly the sort that tests the wisdom and compassion of all. When the parents flatly disagree (and even if they agree against treatment) and the medical people are clear that their ethics require treatment, the state becomes the arbiter?

The arguments in the thread about 5 year survival are specious. 5 year survival is a key medical metric for cancer treatments and considered a major success to achieve. Total remission is much better!


When it's for religious reasons that parents resist life-saving treatments for their children, then yes, the court SHOULD step in. Keep in mind that just because the PARENTS follow a religion doesn't guarantee the CHILD will when she/he is mature enough to have their own beliefs. Many people DON'T follow their parents' beliefs (I don't, many friends of Mine don't), so just being born into a religion doesn't mean its rules should apply to you...UNTIL YOU ARE OLD ENOUGHT TO GIVE THAT CONSENT.


So just to make sure I am understanding you. You are ok with the state stepping in if the parents are basing their decision on a religous reason, but if the parents are basing it on ignorance, we should let them carry on and if the kid dies, so be it?




Aswad -> RE: court forces brain radiation on child (12/25/2012 7:23:04 PM)

quote:

ORIGINAL: tazzygirl

I disagree. All depends on when someone steps in. Its still my belief that of a child has the ability to draw a breath, abuse should be stopped the moment its discovered. Nonlethal abuse can be emotional neglect, daily beatings, ect.


I get the sentiment.

I'm commenting that the good salvaged in cases of rightful intervention, must be weighed against the good lost in cases of wrongful intervention.

quote:

Lack of treatment can "cause" just as much damage.


Good that you put "cause" in quotation marks. Then we can agree.

It's the absence of an improvement, compared to the baseline, not the imposition of harm.

quote:

Then we move into the religious reasons why someone doesnt want Johnny to get a blood transplant. Thats just not a good enough excuse not to save a child.


I don't care if it's religious reasons or anything else, really.

quote:

I do hope you are not under the impression that I disagree with your stand on the irradiation. I believe its in his best interest, medically.


It's hard to say if it's in his best interests, since we're talking about incommensurable factors like length and quality of life. I'm not sure I would have wanted to go on as something potentially far less than I were, compared to having some time as myself, for instance. When we're making that call for the parents, we're making a value judgment that life, any life, is better than going out as yourself, and I don't agree with that assessment, and think it's crossing a serious line to try to impose that on everyone. The point of democracy is to find a compromise that works for everyone, not to enact a tyranny of the majority, particularly a tyranny of values.

quote:

I also know that many parents get so bogged down by "advice" from lay people.. and.. frankly.. shysters... coupled with the fear of what is now happening to their "perfect child" .... that its easy to see how they would be swayed from something so foreign sounding. Which is why they need a representative all their own.


Or just the best information available on which to make their decisions.

IWYW,
— Aswad.




tazzygirl -> RE: court forces brain radiation on child (12/25/2012 7:33:31 PM)

quote:

Or just the best information available on which to make their decisions.


If we amend that to the best medical information, then I can agree. Without the qualifier, the quality of "information" os just far too subjective.

quote:

Good that you put "cause" in quotation marks. Then we can agree.

It's the absence of an improvement, compared to the baseline, not the imposition of harm.


I get where you are coming from. But, medically, baseline would be previous to a disease process. Lets say diabetic. With insulin and diet, children can lead a normal life. Without, they dont have long at all. Its that absence that I could argue would have both an active and a passive intention of harm.

quote:

It's hard to say if it's in his best interests, since we're talking about incommensurable factors like length and quality of life. I'm not sure I would have wanted to go on as something potentially far less than I were, compared to having some time as myself, for instance. When we're making that call for the parents, we're making a value judgment that life, any life, is better than going out as yourself, and I don't agree with that assessment, and think it's crossing a serious line to try to impose that on everyone. The point of democracy is to find a compromise that works for everyone, not to enact a tyranny of the majority, particularly a tyranny of values.


And yet, with the potential, society simply isnt prepared to allow someone so young to "die". Its one thing to go in knowing there is only a 5% chance this will work. But the courts were told an 80%. Until we are really ready to allow parents to actively make the decision to let their children die, this is the system we have for such disputes.

Even if the parents had been in complete agreement, the hospital or physicians could have initiated the same suit, resulting in the same decision.




Aswad -> RE: court forces brain radiation on child (12/25/2012 8:22:17 PM)

quote:

ORIGINAL: tazzygirl

If we amend that to the best medical information, then I can agree. Without the qualifier, the quality of "information" os just far too subjective.


I'm fine with that amendment. I should've made it in the first place.

quote:

But, medically, baseline would be previous to a disease process.


I never said "medical baseline", and to clarify, I did not mean medical baseline (i.e. health), either. The disease occurs without any decision on the part of the parents, and that brings us to the baseline from which action is taken. That action can leave things unchanged, better or worse. Acting to worsen things relative to this baseline is actively causing harm. Not acting to improve things relative to this baseline is an omission, not the same as causing harm. I think it's a shitty choice, if one has the option to unambiguously improve, but I wouldn't put it on par with actually actively causing harm, and I wouldn't want the State to intervene on that grounds alone. Certainly not when it's clearly not an unambiguous improvement, or when the metric of improvement is unclear (such as when dealing with the value assessment of length of life vs quality of life and the definition of the meaning of the latter term).

quote:

Lets say diabetic. With insulin and diet, children can lead a normal life. Without, they dont have long at all. Its that absence that I could argue would have both an active and a passive intention of harm.


And yet, it's just shitty parenting, not murder, to my mind. Now, feeding the kids sugar if they can't produce enough insulin, that we could argue is active harm, and without taking the appropriate measures such as diet or insulin or both it's virtually impossible to feed a diabetic child without causing active harm, so you could certainly make a reasonably neat generalization there. Similarly, I suppose you could make a case that not feeding your child is essentially the same as not claiming the child at all and treat it as an orphan, if that case is successfully made.

Plenty of room for deriving coverage for many of the usual cases without going the default route of granting the State the blank check authority to intervene in any and all parenting decisions based on whatever passes for good parenting at the time. Heck, most people wouldn't know good parenting if it bit them on the ass, anyway, let alone most beurocrats. The State does not have the capacity for responsibility, accountability or conscience, among other things, all of which are essential qualities to be able to fill this role in the first place, assuming one wanted to accord it such authority.

It's administratively convenient to go with "we can do as we like", rather than actually deriving some solid ethical principles about what a State can and cannot do with respect to its citizens, but that doesn't make it the right course to pursue. And given the choice, I prefer for mistakes to be made hands-off, rather than hands-on, because hands-on puts the blood on our hands, while hands-off merely means we weren't as good as we can be, which is inherently always going to be the case.

quote:

And yet, with the potential, society simply isnt prepared to allow someone so young to "die".


Which shows the underlying assumption I don't approve of: the notion that it's automatically everyone else's business what a parent does, and that a parent's choices are somehow inherently subject to societal approval. If we're going to structure everything based on all that is wrong in the world, and pander to the lowest common denominator, we've already lost. Most parents do a decent job. Some do a poorer job, some do a better job.

IMO, we can't regulate ten fellow citizens that do the right thing, just to be able to regulate one fellow citizen that did the wrong thing. In the courts, it's considered better to let ten guilty parties go than to wrongly punish one innocent party. This principle should carry into all aspects of the State exercise of authority, in my opinion, or be abolished from the justice system altogether, one or the other. Either we have this principle and treasure it, or we don't have it at all, or we're inconsistent hypocrites.

It's not the bad seeds that concern me. I frown at them, same as anyone else, but I don't define myself in terms of the negatives. It's the good seeds I am concerned with. The downside with giving people the freedom to fuck up is that some will indeed fuck up. The downside with not giving them the freedom to fuck up is worse, because that affects all those that weren't going to fuck up in the first place.

For the good, the law must be just, else the law is unjust, and it becomes every (wo)man's obligation to disobey it.

If we posit my standards of what I think the minimum required of a parent should be, nine out of ten parents would fail. But I'm not out to impose my standard. I'm out to permit people to live their lives as they will, so long as they don't actively prevent others from this same pursuit of life, liberty and happiness. Children don't have that option, because they lack the freedom and independence required to do so. Parents have to set them up. Parents, not the kibbutz, not the State. Others can help, sure, and society would be wise to invest in its children. But they are contributors, not the actual parents. Nor should they be.

Would you approve of my standards of parenting being imposed on you?

Thought not.

quote:

Its one thing to go in knowing there is only a 5% chance this will work. But the courts were told an 80%. Until we are really ready to allow parents to actively make the decision to let their children die, this is the system we have for such disputes.


I'm ready to allow parents to make the decision to let their children die. Emphasis on let, as opposed to cause.

From what I was told, the courts were told outdated information, but that just underlines the bikeshed principle at work in such cases.

quote:

Even if the parents had been in complete agreement, the hospital or physicians could have initiated the same suit, resulting in the same decision.


Which is doubly screwed up and illustrates that this is a clear cut case of what I'm opposed to as a means.

The ends are still a decent intention, but we can pave a very unfortunate road with those.

IWYW,
— Aswad.




Extravagasm -> RE: court forces brain radiation on child (12/25/2012 9:12:57 PM)


<<The ends are still a decent intention, but we can pave a very unfortunate road with those.>>

--what an inspired way to reframe the principle of unintended consequences and the principle of overreach in one breath !

Not every day to be sure, but now and again, Aswad goes passionately mad with genius.




Aswad -> RE: court forces brain radiation on child (12/25/2012 11:07:13 PM)

~fr~

The key phrase turned out wrong. An attempt at improving/explaining it:

The law must do right by good people, or else it's an unjust law.

Thanks to RemoteUser for the feedback.

IWYW,
— Aswad.




DesideriScuri -> RE: court forces brain radiation on child (12/26/2012 8:08:00 AM)

quote:

ORIGINAL: Aswad
It's not the bad seeds that concern me. I frown at them, same as anyone else, but I don't define myself in terms of the negatives. It's the good seeds I am concerned with. The downside with giving people the freedom to fuck up is that some will indeed fuck up. The downside with not giving them the freedom to fuck up is worse, because that affects all those that weren't going to fuck up in the first place.


THIS! A thousand times, this!!!

quote:

For the good, the law must be just, else the law is unjust, and it becomes every (wo)man's obligation to disobey it.

And, the update:
quote:

The law must do right by good people, or else it's an unjust law.


Herein lies the problem. What is just? What is unjust? Who gets to decide? Gunning down the cop that arrested your relative, resulting in a long jail sentence may be just to some people. Some people see eye for an eye as just. How is "right" (as in "do right") defined? I am not disagreeing with your statements or the idea behind it/them. It's the reality of the situation when you have vastly different thought processes in leadership positions.

Some think it's unjust to increasingly tax the successful to subsidize the unsuccessful. Some see any and all taxes as unjust. Some see complete State-control of everything as just. To be honest, pretty much everyone here is somewhere between the last two intentional extremes. How do we go about defining "right," "just," and, to bring in an over-used and ill-defined example from American politics, "fair?"




susie -> RE: court forces brain radiation on child (12/26/2012 10:07:41 AM)


quote:

ORIGINAL: defiantbadgirl

http://news.yahoo.com/mother-loses-uk-legal-fight-stop-sons-cancer-170325898.html

If there's a good chance of a cure with little to no permanent damage, I could understand. Unfortunately, that is never the case with brain cancer. Malignant brain tumors have tentacles that are impossible eliminate. Even if radiation could kill the tentacles, is side effect of permanent brain damage, permanent mental retardation worth it?


dbg

I have seen many of your posts in the past when you appear to be ignorant of the facts regarding the topic and have thought that you are a little stupid. Now I see that I was wrong and little is entirely the wrong word.

4 years ago I was told I had a massive brain tumor and was given 6 months to live. Luckily a brilliant Neurosurgeon saw my case and decided to attempt to remove it. I was told of the many many things that could go wrong such as blindness, possibility of deafness or paralysis and memory loss. The tumor was removed followed by a course of full brain radiotherapy. I was told that during this healthy brain tissue would be destroyed along with any tumor left after the surgery.

I have had regular scans following the surgery and I am clear of any cancer (my brain tumor was a secondary cancer resulting from skin cancer).

There has been no recurrence of the tumor and absolutely no damage done by the radiotherapy.

Did I make the right choice by going ahead with the surgery? You bet your life I did
Did I make the right choice by going ahead with the radiotherapy? You bet your life I did







vincentML -> RE: court forces brain radiation on child (12/26/2012 11:09:24 AM)


quote:

ORIGINAL: susie


quote:

ORIGINAL: defiantbadgirl

http://news.yahoo.com/mother-loses-uk-legal-fight-stop-sons-cancer-170325898.html

If there's a good chance of a cure with little to no permanent damage, I could understand. Unfortunately, that is never the case with brain cancer. Malignant brain tumors have tentacles that are impossible eliminate. Even if radiation could kill the tentacles, is side effect of permanent brain damage, permanent mental retardation worth it?


dbg

I have seen many of your posts in the past when you appear to be ignorant of the facts regarding the topic and have thought that you are a little stupid. Now I see that I was wrong and little is entirely the wrong word.

4 years ago I was told I had a massive brain tumor and was given 6 months to live. Luckily a brilliant Neurosurgeon saw my case and decided to attempt to remove it. I was told of the many many things that could go wrong such as blindness, possibility of deafness or paralysis and memory loss. The tumor was removed followed by a course of full brain radiotherapy. I was told that during this healthy brain tissue would be destroyed along with any tumor left after the surgery.

I have had regular scans following the surgery and I am clear of any cancer (my brain tumor was a secondary cancer resulting from skin cancer).

There has been no recurrence of the tumor and absolutely no damage done by the radiotherapy.

Did I make the right choice by going ahead with the surgery? You bet your life I did
Did I make the right choice by going ahead with the radiotherapy? You bet your life I did


Some posters here fail to recognize or are unwilling to admit that the human brain has a certain amount of plasticity in which new neural connections can be made for some that are lost. I am not claiming total regeneration but the brain can re-learn some lost cognition and motor activities.




Moonhead -> RE: court forces brain radiation on child (12/26/2012 12:32:11 PM)


quote:

ORIGINAL: Aswad
As a collective of citizens banding together to secure liberty for themselves, and to perpetuate liberty for all citizens.

Apart from the ones who must die to protect somebody else's liberties, apparently.




defiantbadgirl -> RE: court forces brain radiation on child (12/26/2012 1:47:24 PM)


quote:

ORIGINAL: susie


quote:

ORIGINAL: defiantbadgirl

http://news.yahoo.com/mother-loses-uk-legal-fight-stop-sons-cancer-170325898.html

If there's a good chance of a cure with little to no permanent damage, I could understand. Unfortunately, that is never the case with brain cancer. Malignant brain tumors have tentacles that are impossible eliminate. Even if radiation could kill the tentacles, is side effect of permanent brain damage, permanent mental retardation worth it?


dbg

I have seen many of your posts in the past when you appear to be ignorant of the facts regarding the topic and have thought that you are a little stupid. Now I see that I was wrong and little is entirely the wrong word.

4 years ago I was told I had a massive brain tumor and was given 6 months to live. Luckily a brilliant Neurosurgeon saw my case and decided to attempt to remove it. I was told of the many many things that could go wrong such as blindness, possibility of deafness or paralysis and memory loss. The tumor was removed followed by a course of full brain radiotherapy. I was told that during this healthy brain tissue would be destroyed along with any tumor left after the surgery.

I have had regular scans following the surgery and I am clear of any cancer (my brain tumor was a secondary cancer resulting from skin cancer).

There has been no recurrence of the tumor and absolutely no damage done by the radiotherapy.

Did I make the right choice by going ahead with the surgery? You bet your life I did
Did I make the right choice by going ahead with the radiotherapy? You bet your life I did






HOW OLD WERE YOU 4 YEARS AGO? Were you under age 10? I never said radiation therapy caused mental retardation in ADULTS. Knowing the difference between a child and an adult doesn't make me stupid. I grew up hearing about the dangers of radiation, radiation poisoning, babies born deformed because their mothers were exposed to radiation, etc. so I'm probably more afraid of high levels of radiation than some people. But I also remember the Fukushimia (sp?) disaster. If radiation is so harmless, why were so many people freaked out about it? Why were the young people kept away while the oldest Japanese workers exposed themselves? If radiation is harmless, why can't pregnant women have xrays? The fact is, the effects of radiation exposure, especially to the brain are far more harmful to children and unborn babies than to adults.




Moonhead -> RE: court forces brain radiation on child (12/26/2012 3:07:57 PM)

So a tightly focussed beam (or two or more intersecting beams to keep the absorbtion in a specific area) of ionising radiation is identical in effect to the uncontrolled burst from a reactor accident?




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