Rawni
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For most people, disability is years down the road. I have recently heard of some getting it very quickly, which shocked the hell out of me, but all systems were go from the start and with what you say is going on... it will most likely be a long, long road before you get any assistance. I once asked a person in the know... what happens to people between work and disability funds. He said, what I found to be true... but we were knocking heads trying to make a difference... If they don't have support from family and friends, they tend to end up homeless.
Many of us fought for change in a very broken system that becomes more broken by the year. Think of the economy... then think of those losing unemployment and unable to find a job. If they have anything they can apply for disability for and if they do... they need to apply because of work hour credits to get disability... they are all flooding to apply. Work hour credits mean you have to work a certain amount of time out of a certain amount of time. That typically means, two out of five years. Not applying soon enough can hurt you, but applying too soon can hurt you too. I have argued this with lawyers and won, because I studied the social security disability handbook.
Everyone says a lawyer is your best bet. I say, it depends. These lawyers get paid a percentage of your funds once you get disability. Key factor here is that the longer it takes you to get it, the more they make. You tell me how that's going to work.  I worked my son's case that had been ruined from the start by a hospital afraid and refusing to send records. I was terrified I was making the wrong move, but I was able to get around the hospital covering their ass and I got in front of that judge and left the women in the court room crying over the story. It can be done if you have documentation by good record making doctors, etc. The hospital didn't know what I had. lol
Look in the front of your local phone book at the blue pages. Call everyone in that area if you need to, to get the help or advice you need. Look up, Disability Resources. That is actually a name of an agency. They can sometimes find employers that are willing to hire you or give you odd jobs. Like, I put together mailing lists, documents or advertisements from Realtors that send information to lots of people.
It used to be that a number of states would have some funds, typically welfare, of a couple hundred a month, plus food stamps and no medical unless you had children. Most states got rid of that. Washington State is the best for that now. Kansas has recently modified but they came second. There are a couple, east coast that may still have something and nothing in the south.
You need to apply for public housing. Not just HUD for anything you can find that rents to HUD. Do a search from the HUD website looking for rentals for the disabled in your area or an area you will do better in. Get onto the list for on site housing. You don't have to be on disability for many of them. You take a form to your doctor and they state that you would benefit from the housing for this or that medical reason. The lists can be long... so do it now. I cannot impress upon you enough on that. It can be a safety net at some point.
If you get help, you can always improve and go back to work, but you are in transition medically and you need to secure your future as much as you can, however it goes. Keep records of everything the doctors do or test on. Don't depend on getting them at a later time. I even kept prescription notes anything that doctor wrote. One document can make or end your case.
When dealing with seizures... things can be up in the air and it can take a long while to sort out. Many illnesses are like that. So start now, be diligent on your own behalf because I am going to tell you... there is very little help out there. When I worked with Disabled Resources, we found that most work from home things were a scam and there wasn't as much as people thought out there unless you had specialized training. Online schooling at the time didn't take any of the grants that funded some for schooling at in person institutions. We fought for that, but I am not up to date on any changes, so you can check that out.
It is hard to sum up years of working at this, especially when I am in my morning hours, though it is evening. lol
One thing we have a shortage with. Elder care. If you can be a care giver, you can often times make it through these times, depending on what the person needs and what is required. Many found their way by assisting others in similar situations and with the two of you, you might just fit someone out there, that would provide housing in exchange for assistance.
I can't do the research for you, like I used to do for people, but I can give you key words to search for to help lead you in a direction.
The best way is to be healthy... to work, to try to work as long as you can and never need help... but if you are one of those that can't find a way... do try and do not wait, to get the help you need. It is vital that you not wait if you have quality doctors saying you cannot work.
Good luck, you will need it. Don't give up!
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