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RE: Looking for a way - 3/13/2014 4:38:11 PM

angelikaJ

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quote:

ORIGINAL: RickandMimi2011

I cannot work, at least for now, due to seizures. I have the petty maul kind, but that causes me to zone out a lot. If I cannot take medication then I won't be able to work. And the pharoah thing is really a fantasy of mine rather than mandatory.

Have you actually been officially diagnosed with epilepsy via an EEG?
I am asking because it seems to me that they would have written down your diagnosis somewhere, and it is spelled "petit mal".

People with of seizures work all the time.
You shouldn't be driving or operating dangerous machinery.
Also, a history of past side effects shouldn't dissuade you from trying medications.
While it is true that some anti-seizure medications have an application in treating a variety of psychiatric disorders they aren't the same.

I suggest you look into vocational rehabilitation.
They can find you (and perhaps your girlfriend) something you can be trained in.

http://gvra.georgia.gov/vocational-rehabilitation-division

_____________________________

The original home of the caffeinated psychotic hair pixies.
(as deemed by He who owns me)

http://www.collarchat.com/m_3234821/tm.htm

30 fluffy points!

https://www.youtube.com/watch?v=mQjuCQd01sg

(in reply to RickandMimi2011)

Post #: 21

RE: Looking for a way - 3/13/2014 5:10:47 PM

smileforme50

Posts: 1623
Joined: 1/24/2013
From: DelaWHERE(?)
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quote:

ORIGINAL: RickandMimi2011

There is the chance that the meds either won't work, or I will have horrible side effects from them, and yes, I am going to try medication. So Kiwi, please get all your facts straight before going off the deep end like that.

As a fellow epileptic, I know what you're going through. But you would be surprised at how effective the meds are *most* of the time. I would suggest that you check out your local Epilepsy Foundation (link below)

You said "...and yes, I am going to try medication"....I'm assuming that means that you haven't tried any yet? Well, I will tell you my personal experience. The medication had some side effects....mostly made me sleepy, a bit depressed, but for me, they were mild and temporary. As far as medication goes, I was very lucky that it completely controls my seizures and gave me only mild side effects. That is what happens with MOST people, so I will tell you, if you haven't tried any treatment yet, be optimistic, the odds are very good.

From the website: http://www.epilepsyfoundation.org/

How well do seizure medicines work?

]Medicines can control seizures in most people, approximately 60 to 70% of people. However, a person’s response to medicine may vary. Research has shown that when people first start on seizure medicine, only 47% became seizure free with the first medicine. When a second drug was tried, another 13% of people became seizure free. When more than two drugs was tried the response to medicines decreased markedly; only another 4% of people became seizure free after the first two drugs. (1) This study, along with other research, stresses the need for people to seek help for their seizures early and if medicines aren’t working, to see a doctor who specializes in epilepsy. There are many different medicines for seizures and many of these can help, when given for the right type of seizures, at the right dose, and to the right person.

Seizure medicines do not actually "fix" the problems that cause seizures. Instead, they work by trying to stop or suppress the seizures. Before suggesting treatment with a seizure medicine (also called an antiepileptic drug or AED), your doctor usually has made a diagnosis of epilepsy. It is important to openly discuss with your doctor the pros and cons of the different medicines that are available to treat your kind of epilepsy.

What are the goals of treatment with medication?

The goal of treatment with medicines should be – “No Seizures and No Side Effects”. In reality though, it’s hard for many people to obtain this. They may get good control of their seizures, but have medicine side effects. Sometimes the side effects don’t bother people or are worth the benefits of not having seizures. Other times, the side effects aren’t manageable or cause other health problems.

In other people, seizure medicines help, but don’t make a person seizure free. Whether or not this is ‘good enough’ will depend on the type of seizures, other neurological problems, the way the person responds to the medicine, or side effects, for example. If the first drug helps some, but not enough, usually a second drug will be added. Ideally, a person can be kept on one drug to help lessen side effects, but some people may need two or more medicine to get the best seizure control they can.

_____________________________

“Give it to me!” she yelled
“I’m so fucking wet! Give it to me now!”

She could scream all she wanted…..I was keeping the umbrella.

(in reply to RickandMimi2011)

Post #: 22

RE: Looking for a way - 3/13/2014 5:48:56 PM

MAINEiacMISTRESS

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For anyone with seizures, I just ran across this interview with a doctor from John Hopkins discussing ways to control seizure frequency and severity through controlling intake of certain foods,

https://www.youtube.com/watch?v=VNlztgfcKco
The Ketogenic Diet as a Treatment Option - Part 1:

(in reply to kalikshama)

Post #: 23

RE: Looking for a way - 3/13/2014 8:14:47 PM

DesFIP

Posts: 25191
Joined: 11/25/2007
From: Apple County NY
Status: offline

There are many different anti-convulsants out there. Just because you can't take one, doesn't mean another won't work for you. You have to expect it to take a while to find one which works well with limited side effects.

I would suggest you consult a career coach to find a suitable career and then look for training. There should be funds available from the state for someone with a disability.

_____________________________

Slave to laundry

Cynical and proud of it!

(in reply to Rawni)

Post #: 24

RE: Looking for a way - 3/14/2014 3:56:32 AM

smileforme50

Posts: 1623
Joined: 1/24/2013
From: DelaWHERE(?)
Status: offline

quote:

ORIGINAL: MAINEiacMISTRESS

For anyone with seizures, I just ran across this interview with a doctor from John Hopkins discussing ways to control seizure frequency and severity through controlling intake of certain foods,

https://www.youtube.com/watch?v=VNlztgfcKco
The Ketogenic Diet as a Treatment Option - Part 1:

Yes....the ketogenic diet is very successful especially in children with certain types of seizures. It doesn't have the same effect on all types of seizures (and I don't remember which ones), but it has been very successful with certain types.

_____________________________

“Give it to me!” she yelled
“I’m so fucking wet! Give it to me now!”

She could scream all she wanted…..I was keeping the umbrella.

(in reply to MAINEiacMISTRESS)

Post #: 25

RE: Looking for a way - 3/14/2014 5:27:55 AM

AthenaSurrenders

Posts: 3582
Joined: 3/15/2012
Status: offline

fast reply, non snarky answer:

How long ago were you diagnosed, and how is it that you haven't tried any medications yet? Is there some kind of insurance delay? Because it seems a waste to write yourself off as not able to work again when it seems the odds are good that medications will make your condition entirely manageable. I'd at least want to try it before throwing in the towel.

If you don't mind disclosing, what condition prevents your wife from working? Because if you are looking at jobs that you could still do despite your disability, I assume she is too?

I can't advise on the medical side, but there might well be things you can do to top up your income. Others have mentioned work from home opportunities like envelope stuffing. Are either of you crafty or artistic? Perhaps you could sell things you made on etsy. If you are creative enough to use waste materials there will be minimal cost. You said you are smart - do you have expertise in any particular area? Could you write some articles and attempt to sell them? Freelance writing is far from a secure career but if you have knowledge and time on your hands you have nothing to lose by trying. Web design skills would allow you to work from home on your own schedule - if you market yourself competitively due to the lack of qualifications you could make a name for yourself with local small businesses. Or how about babysitting? I assume that since you plan for a family in the future that one or both of you must be well enough to care for children, and a decent grown up babysitter is hard to find. You sort of implied that you had started working towards a degree at some point - were your grades high enough to offer your services as a tutor?

_____________________________

Being your slave, what should I do but tend
Upon the hours and times of your desire?

(in reply to smileforme50)

Post #: 26

RE: Looking for a way - 3/14/2014 6:33:57 AM

JstAnotherSub

Posts: 6174
Status: offline

quote:

ORIGINAL: smileforme50

quote:

ORIGINAL: MAINEiacMISTRESS

For anyone with seizures, I just ran across this interview with a doctor from John Hopkins discussing ways to control seizure frequency and severity through controlling intake of certain foods,

https://www.youtube.com/watch?v=VNlztgfcKco
The Ketogenic Diet as a Treatment Option - Part 1:

Yes....the ketogenic diet is very successful especially in children with certain types of seizures. It doesn't have the same effect on all types of seizures (and I don't remember which ones), but it has been very successful with certain types.

It also causes horrid side effects in many children, as do FDA approved drugs. The cannabis oil derived from the Charlottes Web marijuana has shown no ill side effects yet. Over 200 families are currently using it in Colorado, with many more on the waiting list.

_____________________________

yep

(in reply to smileforme50)

Post #: 27

RE: Looking for a way - 3/15/2014 8:52:22 PM

RickandMimi2011

Posts: 22
Joined: 4/20/2011
Status: offline

I have. It was a recent diagnosis, due to no one actually looking for it, and I did get some help through the vocational rehab group here in GA, that's actually who told me I should get checked for it. If I can take the meds I plan to go back and finish my program, at which point I guess this has be a mute point. But I like to have a plan b if I need it.

(in reply to angelikaJ)

Post #: 28

RE: Looking for a way - 3/15/2014 9:25:15 PM

ExiledTyrant

Posts: 4547
Joined: 12/9/2013
From: Exiled
Status: offline

quote:

ORIGINAL: kalikshama

Someone at dinner was telling me how cannabis helped an acquaintance tremendously with seizures. Been meaning to look into this.

(edited to delete my question that the OP answered in the post above)

Well, Indica with a high CNB will alleviate the seizures, but he will be too stoned to work.

Jus sayin
Exiled

_____________________________

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To lead, first follow: Aurelius, Epictetus, Descartes, Sun Tzu, to name a few.

Semper fidelis (which sometimes feels like a burden)

(in reply to kalikshama)

Post #: 29

RE: Looking for a way - 3/15/2014 9:27:13 PM

angelikaJ

Posts: 8641
Joined: 6/22/2007
Status: offline

quote:

ORIGINAL: RickandMimi2011

I have. It was a recent diagnosis, due to no one actually looking for it, and I did get some help through the vocational rehab group here in GA, that's actually who told me I should get checked for it. If I can take the meds I plan to go back and finish my program, at which point I guess this has be a mute point. But I like to have a plan b if I need it.

You might still qualify for the vocational rehab program once you find meds that work for you.

_____________________________

The original home of the caffeinated psychotic hair pixies.
(as deemed by He who owns me)

http://www.collarchat.com/m_3234821/tm.htm

30 fluffy points!

https://www.youtube.com/watch?v=mQjuCQd01sg

(in reply to RickandMimi2011)

Post #: 30

RE: Looking for a way - 3/15/2014 9:37:37 PM

sexyred1

Posts: 8998
Joined: 8/9/2007
Status: offline

quote:

ORIGINAL: RickandMimi2011

We have not had kids yet for the reason that we could not afford to give them a good life. I will not exclude the idea of working, I really want to. That's why I am here. I am looking for ideas of kinds of jobs that would be effected as badly if I zone out on the job. So if I can't take meds I have an ideawhat I need to look in to.

Dude, I am not buying the not being able to take meds bull. You are young and some conditions are chronic and require meds. All meds have side effects.

I just got cancer. You know chemo gives fucking horrific side effects, but I still do it. I have to take alot of meds with it that make me feel like crap.

If one med makes you zone out, try another.

You are too young to give up working.

< Message edited by sexyred1 -- 3/15/2014 9:38:28 PM >

(in reply to RickandMimi2011)

Post #: 31

RE: Looking for a way - 3/16/2014 12:42:59 AM

MistressDarkArt

Posts: 5178
Status: offline

quote:

ORIGINAL: ExiledTyrant

quote:

ORIGINAL: kalikshama

Someone at dinner was telling me how cannabis helped an acquaintance tremendously with seizures. Been meaning to look into this.

(edited to delete my question that the OP answered in the post above)

Well, Indica with a high CNB will alleviate the seizures, but he will be too stoned to work.

Jus sayin
Exiled

As recently discussed on another thread in P&R, CBD is the non-psychoactive component which controls seizures. The strain Charlottes's Web is rich in CBD and so low in psychoactive THC as to be considered a non-issue for those who use it. That's why it's working very well with small children, who, once their seizures are adequately controlled with CW on board, quickly 'catch up' developmentally.

(in reply to ExiledTyrant)

Post #: 32

RE: Looking for a way - 3/16/2014 5:06:35 AM

ExiledTyrant

Posts: 4547
Joined: 12/9/2013
From: Exiled
Status: offline

quote:

ORIGINAL: MistressDarkArt

As recently discussed on another thread in P&R, CBD is the non-psychoactive component which controls seizures. The strain Charlottes's Web is rich in CBD and so low in psychoactive THC as to be considered a non-issue for those who use it. That's why it's working very well with small children, who, once their seizures are adequately controlled with CW on board, quickly 'catch up' developmentally.

Sweet! Do you know if it will be available in lollypop form (my research has been minimal, this dude does not partake of the herb)?

And... since you're in the know, which is best for adolescent fibromyalgia?

_____________________________

Gnothi Seauton
To lead, first follow: Aurelius, Epictetus, Descartes, Sun Tzu, to name a few.

Semper fidelis (which sometimes feels like a burden)

(in reply to MistressDarkArt)

Post #: 33

RE: Looking for a way - 3/16/2014 6:12:13 PM

LookieNoNookie

Posts: 12216
Joined: 8/9/2008
Status: offline

quote:

ORIGINAL: RickandMimi2011

There is the chance that the meds either won't work, or I will have horrible side effects from them, and yes, I am going to try medication. So Kiwi, please get all your facts straight before going off the deep end like that.

I think her advice based on what you posed was exceptional advice.

Clearly you can afford internet,you can type, grammar is solid...I can think of about 8,000 jobs you could do from an igloo in Nome.

The argument was you couldn't work because of medical conditions and then said "There is the chance that the meds either won't work, or I will have horrible side effects from them" indicating you haven't even tried your meds.

I smell a rat. One that looks to others to resolve issues created by lack of effort.

Try another freeloader approach.

(in reply to RickandMimi2011)

Post #: 34

RE: Looking for a way - 3/16/2014 7:59:46 PM

TieMeInKnottss

Posts: 1944
Joined: 9/6/2012
Status: offline

I am not familiar with the Kennesaw GA job market but, unfortunately, our advice is limited by the little we know about you. Do you just have a HS degree? What type of training were you doing? What did you do before? I can give a huge list of jobs but it will do you no good if you are not qualified?

Have you applied to grocery stores as parcel pick-up or bagger? Fast food? Custodial? I am not really familiar with your medical condition so I don't know if you are talking ongoing seizures or periodic...the actual impact on your day to day life. How about temp jobs where you can accept or turn down assignments depending on your condition?

The one thing I will say, based on your profile, is the last thing you need in your life is an additional sub. One, does not sound like you are mentally or physically at a place where establishing that type of dynamic-especially adding a 3rd person to an existing couple-is a good use of your time. Also, remember even if you are the best Dom ever...becoming immediately dependent on a sub for your own financial or physical health and well-being quickly becomes YOU relying on them and THEM being in the power position (don't misunderstand-I am only talking about new relationships..not all D/s dynamics)

(in reply to LookieNoNookie)

Post #: 35

RE: Looking for a way - 3/16/2014 11:13:21 PM

littlewonder

Posts: 15659
Status: offline

My niece just started taking seizures, about 5 or more a day. She just started meds and they still have to regulate them since sometimes they work and other times they just make her feel even worse than before. But ya know, she's still continuing to go to nursing school, volunteers at a vet and works at a bird rescue center (She adores adores adores birds...weird child.

).

So those seizures should not stop you from doing what you want. Don't use it as an excuse. Instead get your meds regulated and work around it from there. Everything is still very much possible.

It's only you allowing your condition to hold you back.

_____________________________

Nothing has changed
Everything has changed

(in reply to TieMeInKnottss)

Post #: 36

RE: Looking for a way - 3/28/2014 6:06:02 AM

RickandMimi2011

Posts: 22
Joined: 4/20/2011
Status: offline

Ok. Here's an update for those of you who were kind enough to reply to my post. I have seen a specialist about my zoning out episodes and he wants me to do a 3 day study to be absolutely sure as to what they are. Them being seizures has been thrown into question at this time so hopefully I will know soon.

(in reply to Rawni)

Post #: 37

RE: Looking for a way - 3/28/2014 6:36:11 AM

LadyConstanze

Posts: 9722
Joined: 2/18/2005
Status: offline

quote:

ORIGINAL: LookieNoNookie

quote:

ORIGINAL: RickandMimi2011

There is the chance that the meds either won't work, or I will have horrible side effects from them, and yes, I am going to try medication. So Kiwi, please get all your facts straight before going off the deep end like that.

I think her advice based on what you posed was exceptional advice.

Clearly you can afford internet,you can type, grammar is solid...I can think of about 8,000 jobs you could do from an igloo in Nome.

The argument was you couldn't work because of medical conditions and then said "There is the chance that the meds either won't work, or I will have horrible side effects from them" indicating you haven't even tried your meds.

I smell a rat. One that looks to others to resolve issues created by lack of effort.

Try another freeloader approach.

Actually, he is just asking for work that he could do, ideas of how he can earn a living, which shows a pretty hands on approach and not being a freeloader.

As for meds, never had to deal with anything quite as terrible as seizures, but I have a bunch of allergies, some manifest in hayfever where my eyes are almost glued together, tried about every antihistamine out there as it's not particularly pleasant and since hubby and I run our own company, not being able to work costs me. In about 10 years I haven't found a single antihistamine that works for me, the ones that stop the allergy also tend to knock me out and I'm just drowsy then, which also doesn't help. It gets frustrating, so I can understand why he's not all that keen to continue. Sometimes side effects of drugs are worse than the condition you take them for.

_____________________________

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Those who do and those who don't!

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(in reply to LookieNoNookie)

Post #: 38

RE: Looking for a way - 3/28/2014 7:23:42 AM

kalikshama

Posts: 14805
Joined: 8/8/2010
Status: offline

quote:

Ok. Here's an update for those of you who were kind enough to reply to my post. I have seen a specialist about my zoning out episodes and he wants me to do a 3 day study to be absolutely sure as to what they are. Them being seizures has been thrown into question at this time so hopefully I will know soon.

Thanks for the update - good luck!

(in reply to RickandMimi2011)

Post #: 39

RE: Looking for a way - 3/28/2014 7:40:51 AM

RickandMimi2011

Posts: 22
Joined: 4/20/2011
Status: offline

Thank you. And I will let you all know what I find out too. Thanks for all the support and suggestions.

(in reply to kalikshama)

Post #: 40

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