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RE: A Christmas Miracle! - 12/24/2009 3:54:57 PM   
SweetPoosy


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Lockit, I used to work for a subsidiary of the Institutes for the Achievement of Human Potential, and I learned that the human brain is indeed an amazing organ, and there is a lot more that can be done in the case of brain injuries than was originally thought years ago, and even now. Your story truly is a miracle, both from the standpoint of the recovery already made, but also because of the love that you have shown your son, and your determination to NOT give up on him.

What you are seeing is your hard work coupled with the miraculous ability of the brain to heal and re-route things...but always remember, without your work and love, the brain would have had an impossible task!

If you are not already aware of them, check out the Institutes, perhaps there are other things they could teach you which might bring even greater improvements.

HUGS!

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RE: A Christmas Miracle! - 12/24/2009 4:05:11 PM   
LaTigresse


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Oh Lockit! From one mother to another I am so very happy for you. I am smiling and have tears in my eyes. This is such beautiful news.

I wish I could hug you in person because it is how I feel and I so hate typing hugs.

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RE: A Christmas Miracle! - 12/24/2009 4:51:08 PM   
DarkSteven


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quote:

ORIGINAL: SweetPoosy

Lockit, I used to work for a subsidiary of the Institutes for the Achievement of Human Potential, and I learned that the human brain is indeed an amazing organ, and there is a lot more that can be done in the case of brain injuries than was originally thought years ago, and even now. Your story truly is a miracle, both from the standpoint of the recovery already made, but also because of the love that you have shown your son, and your determination to NOT give up on him.

What you are seeing is your hard work coupled with the miraculous ability of the brain to heal and re-route things...but always remember, without your work and love, the brain would have had an impossible task!

If you are not already aware of them, check out the Institutes, perhaps there are other things they could teach you which might bring even greater improvements.

HUGS!


What Poosy said.

Lockit, determination and love fills in the gaps that medications have.


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RE: A Christmas Miracle! - 12/24/2009 5:39:04 PM   
LdyyR


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Lockit,

Such a great thing to here from a most wonderful women/mother. So happy for you and your family. A most precious gift at a perfect time of year.

Thank you for sharing your good news.

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RE: A Christmas Miracle! - 12/24/2009 8:37:47 PM   
lusciouslips19


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quote:

ORIGINAL: Lockit

Thank you everyone! I have tears in my eyes as I am announcing this miracle on facebook to the family and such. This opens so many doors and I guess I am a bit overwhelmed! Joyfully so!

Lushy... you have the strength! You're a mom and do what a mom does. I know that direction two lives thing. OMG... some days! You are tired and trying to get something that must be done and are having to tell them where to walk or what to do and your own head isn't able to do for you at the moment, mush less two! Sometimes it is easier just to sit them somewhere and do for yourself, but that doesn't help when you are in the middle of a store and they are walking into things or people or lost.

Please hang in there! My Charlie is proving many things here and I may have to consider writing about our experience because I read nothing about this type of thing in all these years. I believe it can happen!

Lushy if you want to chat sometime... maybe I can tell you how I learned what I did and did what we did and maybe... you can have a miracle too! Never give up hope... give up on a moment or a something or other... but hang on to that hope! Big hugs!



My son is a blessing in so many ways. He actually can do a number of things without direction or given ahead of time. I have been quite suprised that I have been telling him what to do then going back down to my apartment and he actually does get dressed on his own. I did leave the clothes out and he actually did it. There are times that he's completely oblivious. Like we get out of the car at the house and instead of walking to it, he stands there staring. Or walks to the car and then gets a blank stare on his face. But thats what happens in that Asperger head.

But I really have as much pride and joy as you. If you read his reports and essays, they would delight you. He won a contest last year. for an essay he wrote On his state testing called ISAT's for 4th grade(last year) he scored 96 percentile in reading, 99 in math, and 98 in reading. His teachers have all called him a special light in spite of the idle threats that get him in trouble. Hes actually maturing to the point that he is recognizing his triggers that lead him to meltdown(overstimulation) and he is learning and allowed to remove himself from the situation. He actually said once, "I almost got mad in Gym(one of his triggers from the lack of structure) but I decided it wasnt worth it.

I shouldnt complain. I have a way easier road than you and he is only 11. I worry about his future and lack of sense of time, etc. But he has years to grow and overcome his differences. he obviously has the intellect and talent to overcome.

Plus as Sunshinemiss and Tulip can confirm, he is extremely lovable and charming. If your son has 1/16th of you in him, Im sure he has some of that charm too.

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RE: A Christmas Miracle! - 1/10/2010 6:14:16 PM   
LookieNoNookie


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I'm flabbergasted :)

What an awesome post!

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RE: A Christmas Miracle! - 1/10/2010 6:51:33 PM   
xxblushesxx


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Yeah, I wasn't here when this was posted. I'm so happy for you and for Lushy. BIG HUGS to you both!

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RE: A Christmas Miracle! - 1/10/2010 7:48:37 PM   
peppermint


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I'm so happy for you Lockit!!!!  You brought a tear or two to my eyes.  It's so great when kids surprise you by doing something they aren't supposed to do...but they do and it's super fantastic!!!!!

I still remember doing my twice yearly visit to see the grandkids.  My autistic grandson looked me straight in the eyes, gave me a hug, and said "hello, Baba"  (Baba means grandma).  Okay, he never looked me in the eyes again for the rest of that visit, but that first time was something I will never forget.  For the first time I had hope. 

And now you have hope too.  You are very blessed. 

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RE: A Christmas Miracle! - 1/10/2010 8:01:20 PM   
Lockit


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LOL... I thought this thread was long gone... imagine my surprise here! lol

Lushy... I can so relate! But those shining moments... you just live for them!

We had a new adventure the other night! lol I am thinking this isn't going to be an easy thing at moments, but I am still happy!

We had a plumbing problem and the guys plugged in a hair dryer outside to thaw the pipe. We didn't notice for a while... but my son went to go to the bathroom and came out making his signs... trying to tell me something was wrong. The lights in his bathroom wouldn't work. I knew it was the switch. I checked the breakers and couldn't see one off and just knew there was a short in that switch. So I am trying to get the electric off to that room until I can get someone over here.

The list of which breaker goes to what area was all wrong. So I am on the phone trying to get help and my son is getting upset. He never gets upset! He is always happy! He keeps pointing to the bulbs... he keeps trying to plug things in and is really mad at me because he knows what is wrong and I am not listening to him!

I had to sit him down and almost yell at him because he was getting himself into some dangerous situations with trying to prove to me I was wrong! He kept pointing to the bulbs. I would sit him down between trying to run this way and that and monitor him at the same time and he would make odd sounds of anger and frustration with me.

Finally my daughter on the phone says... Mom... didn't Charlie work as an electrician? OMG! Yes! Well, he thinks he knows what's going on and you know he was always the expert on everything! lol  I finally had to tell him that while he is getting better and remember's some things... it wasn't the bulbs and he is just a bit confused. He didn't like me for a while, but finally I proved to him it was the breakers and he flipped me off and wanted to go to his room. lol He did smile though.

Thank you everyone!

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RE: A Christmas Miracle! - 1/10/2010 8:14:01 PM   
xxblushesxx


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Awww...

Gosh, it must be so difficult for him.

((((hugs))))

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RE: A Christmas Miracle! - 1/10/2010 8:25:03 PM   
Lockit


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Hugs... blushes! I know just what Lushy means with that lost look they get. It is heartbreaking! I cannot imagine what it must feel like to be so lost or just there and wonder what they think or feel. I didn't see distress so I felt better about things, but I can see that he may get distressed at some point. I think that is in part why he stopped talking. He knew something wasn't right and his brain wasn't making sense.

Sometimes he can be right on with his thinking for a few mintues and lost the next. I simply cannot imagine what it is like!

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RE: A Christmas Miracle! - 1/10/2010 8:45:57 PM   
intenze


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quote:

ORIGINAL: Lockit



Please hang in there! My Charlie is proving many things here and I may have to consider writing about our experience because I read nothing about this type of thing in all these years. I believe it can happen!




oh my..that is huge. I am so glad for you and your son! I do hope you write about this, it may help a lot of other people. I can see this working with many brain issues, such as Aspbergers, Autism, and others.  Please, please write about it!
Hugs...


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RE: A Christmas Miracle! - 1/10/2010 8:56:39 PM   
kdsub


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I feel bad being one of the closest to you and one of the last to join in your joy. Many who knew you here on CM and the other side knew your tragedies and prayed for you.

It may not have helped but I like to think it may have…Please take what I say as a person of faith, not a fanatic, trying to help someone they have come to like and respect…God bless you and your family and may your sons recover continue to where he can enjoy his time on this earth.

Butch


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RE: A Christmas Miracle! - 1/10/2010 9:25:25 PM   
LafayetteLady


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Dearest Lockit,

You and I are only beginning to become friends. I never saw this post and I am glad someone resurrected it. I remember reading about your trials with Charlie on Holly's thread about special needs children. Even then I thought, "Wow. This here is one remarkable woman. What strength."

As I read your post, the tears welled up and for once, I didn't try to push them back down. As much as my 16 year old has "issues" and makes me crazy, I can't even imagine what it would be like to have such tragedy strike him as an adult.

So often here, people "poo poo" the concept of "love" (ok they talk about being "in" love, but so what). If there was ever another story here about what the power of love can achieve, I certainly haven't seen it. Yes, you put in a whole hell of a lot of work, but it was your love that kept you going.

You truly are a remarkable woman and I'm honored that you and I have gotten to know each other a little bit.

You have truly been blessed by whatever "higher power" you believe in as well as all the other Gods, Goddess and High Spirits.

I have no doubt that each day will bring many more surprises and miracles as your son continues to regain bits of things others said would be gone forever.

And I think you need to bring him to all those doctors who said he would never recover so that he can flip THEM off.

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RE: A Christmas Miracle! - 1/12/2010 5:27:18 PM   
LookieNoNookie


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quote:

ORIGINAL: LafayetteLady

Dearest Lockit,

You and I are only beginning to become friends. I never saw this post and I am glad someone resurrected it. I remember reading about your trials with Charlie on Holly's thread about special needs children. Even then I thought, "Wow. This here is one remarkable woman. What strength."

As I read your post, the tears welled up and for once, I didn't try to push them back down. As much as my 16 year old has "issues" and makes me crazy, I can't even imagine what it would be like to have such tragedy strike him as an adult.

So often here, people "poo poo" the concept of "love" (ok they talk about being "in" love, but so what). If there was ever another story here about what the power of love can achieve, I certainly haven't seen it. Yes, you put in a whole hell of a lot of work, but it was your love that kept you going.

You truly are a remarkable woman and I'm honored that you and I have gotten to know each other a little bit.

You have truly been blessed by whatever "higher power" you believe in as well as all the other Gods, Goddess and High Spirits.

I have no doubt that each day will bring many more surprises and miracles as your son continues to regain bits of things others said would be gone forever.

And I think you need to bring him to all those doctors who said he would never recover so that he can flip THEM off.



Nahhhhhh.....better....let 'em get to know him instead :)

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RE: A Christmas Miracle! - 1/12/2010 5:37:56 PM   
lovingpet


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Sweetie.... This is just awesome! I am so excited for you and for your whole family! There is much more to be done, but now it can be done with vigor, purpose, and direction knowing that it does work and he will succeed step by step. Keep it up and all my best!

lovingpet

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RE: A Christmas Miracle! - 1/12/2010 5:47:27 PM   
LadyEllen


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Simply wonderful Lockit; long may the progress continue! And though I know you wont listen, remember to take time for yourself too, eh?

E

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RE: A Christmas Miracle! - 1/12/2010 7:56:26 PM   
Termyn8or


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FR

When it comes to things lke this, "can't" ain't a word. At least half the time when one tells me of another's limitations they are proven wrong. Many others would just strap the kid down and throw him in a room somewhere. The fact that you didn't take their word for it is a feather in your cap. A BIG one IMO.

Medical science is one of the biggest nosebleeds in town. I have known several people over the years who have been told they will never walk again, but there they are treipsing around like the world is ending. One got in a motorcycle wreck and hurt his back. He was admonished to never ride again. Unacceptable to him he climbed back on the hog and rode anyway. He was in constant pain until one day. He got into another wreck and the pain was gone. Time after time they are proven wrong.

Perseverence and the refusal to accept defeat at the start of the game are what made this happen. You are an asset to the human race.

I am a very stoic person, but that doesn't mean that I can't be moved. Thanks for the good news. At least something is going right in the world.

T

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RE: A Christmas Miracle! - 1/13/2010 2:19:49 AM   
stella41b


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Congratulations..

Nothing brightened up Christmas more than hearing this news.

I'm so very happy for you.


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RE: A Christmas Miracle! - 1/13/2010 7:51:29 AM   
Lockit


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Wow... my head is swimming here in a foggy morning brain and there is no way I can do justice in a response to all of you and what you have said. There is a part of me that really thanks you.. I do thank you... god... trying to talk with brain not in gear isn't working here! I guess what I am trying to say is that... I'm just a stubborn mom and I did what a stubborn mom or even a just a mom who is in a situation and has to do for her child. But then I think... isn't it a parents love that is amazing? I don't want to belittle what I or other's do as a parent because you are doing some amazing things and yet... you simply are doing what a parent does.

Do you know what I mean? I really don't know how to say this without sounding wrong. So I am sorry.

Your words, encouragement... the wonderful things you have said mean a lot to me, but I don't feel all that special because there are so many out there doing what I have done or doing far more and I guess I am uncomfortable that I am getting attention like this and they may not be.

In the course of all of this, in the beginning I used to go to a chat site and I told some of my friends what had happened. Everyone was shocked of course and very supportive and if it hadn't have been for a couple of people who stood by me, checked on me and let me vent with all the hospital was doing, I might not have made it. I was very alone in my personal life as this and some other things split the family that was left from a previous split... and it was just me trying to handle the all too real facts. All the in person friends I had... men who I dated or whated to date me slipped away... a distant memory.

There was one man who knew my son and had met me a couple of times and that man did everything he could to help me. Stranger's basically stepped up and helped. One I met became a dominant online to me so that I could step down... domina down and held me accountable for eating and sleeping and keeping going. He worked with an elderly man who was very similar to my son and I learned many things from him on how to work with my son when I was frustrated and tired because I could not sleep... because the kid would go for days sometimes.

These were my hero's... they saved me in a place where I couldn't do anything about anything. Then I got things under control, found a submissive man who was wonderful and found this site. I no longer needed someone to account to and had found my way. But others since I came here, would support me in other area's of my personal life because... everything was changed. I was no longer free to go out or meet people or have much of a life. Like Stella... who talked to me when other crisis would come or some other's you all might not know... or don't wish to be mentioned... a couple sent me money and then there was CD who would call when all I could do was cry over something and who would make me smile. They all let me know I wasn't totally alone and that I would get through this. So it took a number of people to make it so I could do what a parent does. And there aren't enough thanks in the world to cover what they did for me and how it made me feel.

I was introduced to a woman from that chat site who has a son injured on a skate board. He was far worse than my son! That woman was amazing and she had it far worse in what was required of her. I just don't know how she did it.

So I don't feel so specail. I feel humbled... and maybe that is a good thing for this strong willed woman! lol So I hope I am not belittling the beautiful things you all have said because to me they are beautiful blessings and they do help strengthen me! But personally I just feel like a mom, doing her best to do what is required of her by life and love.

God, I hope you understand! I don't want to give a back handed thank you! Because what you all have said is a rich blessing to me and it does encourage me and touches my soul. I guess, I just don't feel all that special. I hope you understand!

< Message edited by Lockit -- 1/13/2010 7:53:51 AM >


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