Archer -> RE: Rush, Fox, and Olberman (10/30/2006 7:55:02 AM)
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http://www.michaeljfox.org/news/article.php?id=5 Lucky Man Chapter 8: Unwrapping the Gift I need to explain the "on-off" phenomenon. This Jekyll-and-Hyde melodrama is a constant vexation for the P.D. patient, especially one as determined as I was to remain closeted. "On" refers to the time when the medication is telling my brain everything it wants to hear. I'm relatively loose and fluid, my mind clear and movements under control. Only a trained observer could detect my Parkinson's. During one of my "off" periods, even the most myopic layperson, while perhaps not able to diagnose P.D. specifically, can recognize that I am in serious trouble. When I'm "off," the disease has complete authority over my physical being. I'm utterly in its possession. Sometimes there are flashes of function, and I can be effective at performing basic physical tasks, certainly feeding and dressing myself (though I'll lean toward loafers and pullover sweaters), as well as any chore calling for more brute force than manual dexterity. In my very worst "off" times I experience the full panoply of classic Parkinsonian symptoms: rigidity, shuffling, tremors, lack of balance, diminished small motor control, and the insidious cluster of symptoms that makes communicationówritten as well as spokenódifficult and sometimes impossible. a more plain languge statement that tells me that his case is the other way the meds eliminate the symptoms. "I just hope my pills kick in by the time the Who comes on," I told Tracy. "Because I want to be able to relax and enjoy the music." That's all I was thinking about. I realized this represented a 180-degree change in outlook, a change made possible by my willingness to let others in on my disease." AS to admitting he appeared ithout his medication. "Snippets of my testimony were featured on several of the nightly news broadcasts. One line in particular from my prepared statement got a lot of play: "In my forties, I can expect challenges most people wouldn't face until their seventies and eighties, if ever. But with your help, if we all do everything we can to eradicate this disease, when I'm in my fifties I'll be dancing at my children's weddings." I had made a deliberate choice to appear before the subcommittee without medication. It seemed to me that this occasion demanded that my testimony about the effects of the disease, and the urgency we as a community were feeling, be seen as well as heard. For people who had never observed me in this kind of shape, the transformation must have been startling."
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