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I'm going into the SSI office tomorow to ask about rete... - 2/28/2013 11:18:47 AM   
Toppingfrmbottom


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Status: offline 		So that i actually say the right thing and don't give the wrong impression of what I am looking for, what do I say, other than i need to be retested because I have developed all the markers for adult autisim or aspbergers.

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RE: I'm going into the SSI office tomorow to ask about ... - 2/28/2013 11:35:22 AM   
DomKen


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Status: offline 		Why would the SS office care? If you want that sort of testing talk to a care giver or social worker.

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RE: I'm going into the SSI office tomorow to ask about ... - 2/28/2013 11:38:41 AM   
Toppingfrmbottom


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Status: offline 		Because I was told in another thread to go to the SSI building and talk to a an employee / ssi person there.

I am also asking them a bout the ticket to work program, and trying to find out what they will want to change my living arrangment status.

< Message edited by Toppingfrmbottom -- 2/28/2013 11:44:50 AM >

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RE: I'm going into the SSI office tomorow to ask about ... - 2/28/2013 2:30:00 PM   
kiwisub12


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Status: offline 		I could be wrong, but i don't think you "just" develope either of those diseases.

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RE: I'm going into the SSI office tomorow to ask about ... - 2/28/2013 2:42:31 PM   
TheLilSquaw


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quote:

ORIGINAL: kiwisub12

I could be wrong, but i don't think you "just" develope either of those diseases.



This is true, however; both are often undiagnosed and misdiagnosed.

Since TFB is on SSI, they are a good resource for testing for such thing. They did have my son tested by their doctors years ago.



TFB, I would simply ask them if they can help you get a cognitive and psychological tests done because you have some concerns. Don't make assumptions or try and diagnose yourself simply label it that concerns.

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RE: I'm going into the SSI office tomorow to ask about ... - 2/28/2013 2:44:36 PM   
jlf1961


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Status: offline 		Everything I know and have researched states that both conditions manifest themselves in early childhood. However, aspbergers can be misdiagnosed and thus go untreated for years.

In other words, you cannot just develop an ASD, it just does not happen.

You can develop similar conditions after a severe head trauma.

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RE: I'm going into the SSI office tomorow to ask about ... - 2/28/2013 2:55:18 PM   
Toppingfrmbottom


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Joined: 6/7/2009
Status: offline 		No. you don't just develop that, I've shown markers for a long time, as well as possible emotional/ psychological /other things. I was evaluated for SSI at 16 and I had all the mental issues and problems diagnosed when i was in 4th grade. so it is absolutely possible more things have cropped up.



quote:

ORIGINAL: kiwisub12

I could be wrong, but i don't think you "just" develop either of those diseases.


< Message edited by Toppingfrmbottom -- 2/28/2013 3:06:58 PM >

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RE: I'm going into the SSI office tomorow to ask about ... - 2/28/2013 5:19:21 PM   
angelikaJ


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Status: offline 		My question to you is: what will having a clarification of what your mental quirks are do for you?
How will your life change?


If your therapist thinks you have Asperger's or autism, wouldn't she just give you appropriate interventions?

I think usually testing is done via state services, which you should already have.
Do you have a case manager?

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RE: I'm going into the SSI office tomorow to ask about ... - 2/28/2013 5:58:21 PM   
Toppingfrmbottom


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Status: offline 		They could just be more than quirks, But, having correct diagnoses could help me get the CORRECT help I need. Open doors that were closed to me before.

My therapist hears me out when I told her about the suspicion that my mental health has changed, and she said well Mercy medical does testing of some kind I can give you a referal if you need one.

I don't have a case manager, nope.
That's all she said.
quote:

ORIGINAL: angelikaJ

My question to you is: what will having a clarification of what your mental quirks are do for you?
How will your life change?


If your therapist thinks you have Asperger's or autism, wouldn't she just give you appropriate interventions?

I think usually testing is done via state services, which you should already have.
Do you have a case manager?


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RE: I'm going into the SSI office tomorow to ask about ... - 2/28/2013 6:13:22 PM   
TheLilSquaw


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quote:

ORIGINAL: angelikaJ

Do you have a case manager?



Social Security does not assign case mangers. If you call to discuss your case you get a general personal who simply looks it up in the system. The ONLY time that hasn't been the case in my experience is if they send you a notice and you call to speak to that specific person or have an appointment to see a them for that situation only. However, they are not assigned to you on a permanent basis.



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RE: I'm going into the SSI office tomorow to ask about ... - 2/28/2013 6:33:50 PM   
angelikaJ


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quote:

ORIGINAL: TheLilSquaw


quote:

ORIGINAL: angelikaJ

Do you have a case manager?



Social Security does not assign case mangers. If you call to discuss your case you get a general personal who simply looks it up in the system. The ONLY time that hasn't been the case in my experience is if they send you a notice and you call to speak to that specific person or have an appointment to see a them for that situation only. However, they are not assigned to you on a permanent basis.




In the state where I live, if one is eligible for services (and qualifying for SSI due to a permanent mental or physical disability does that) one is assigned a case manage through the state office that specific support is based out of...ie it used to be DMR and DMH here but as I understand it we no longer use MR as a designation.

When I worked in Florida it was much the same way, only they were called support coordinators.
I am sorry I was not clear that my question was in reference to a case manager for state based services.

quote:

Original: Toppingfrmbottom They could just be more than quirks, But, having correct diagnoses could help me get the CORRECT help I need. Open doors that were closed to me before.


I did not mean to minimise your issues by using the word quirks.
I know some people who describe their various situations that way...or describe themselves as being "mentally different".

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RE: I'm going into the SSI office tomorow to ask about ... - 2/28/2013 6:39:29 PM   
TheLilSquaw


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From: Middle River, MD
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quote:

ORIGINAL: angelikaJ


In the state where I live, if one is eligible for services (and qualifying for SSI due to a permanent mental or physical disability does that) one is assigned a case manage through the state office that specific support is based out of...ie it used to be DMR and DMH here but as I understand it we no longer use MR as a designation.

When I worked in Florida it was much the same way, only they were called support coordinators.

I am sorry I was not clear that my question was in reference to a case manager for state based services.



When you say state based services I am assuming you are not specifically speaking about SSI itself but perhaps food stamps, ect. If I am wrong please correct me.



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RE: I'm going into the SSI office tomorow to ask about ... - 2/28/2013 6:56:09 PM   
angelikaJ


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quote:

ORIGINAL: TheLilSquaw

quote:

ORIGINAL: angelikaJ


In the state where I live, if one is eligible for services (and qualifying for SSI due to a permanent mental or physical disability does that) one is assigned a case manage through the state office that specific support is based out of...ie it used to be DMR and DMH here but as I understand it we no longer use MR as a designation.

When I worked in Florida it was much the same way, only they were called support coordinators.

I am sorry I was not clear that my question was in reference to a case manager for state based services.



When you say state based services I am assuming you are not specifically speaking about SSI itself but perhaps food stamps, ect. If I am wrong please correct me.




Nope, state based services such as supported work programs, help with financial management or a variety of day-habilitation programs, or club house model programs.

In some states, the Department of Children and Families or the Department of Mental Health or Developmental Disabilities Services (and other assorted names), have supports for such.

Such a thing might be possible with a more current diagnosis... depending on what state services are available.


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RE: I'm going into the SSI office tomorow to ask about ... - 2/28/2013 7:01:39 PM   
TheLilSquaw


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From: Middle River, MD
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quote:

ORIGINAL: angelikaJ


Nope, state based services such as supported work programs, help with financial management or a variety of day-habilitation programs, or club house model programs.

In some states, the Department of Children and Families or the Department of Mental Health or Developmental Disabilities Services (and other assorted names), have supports for such.

Such a thing might be possible with a more current diagnosis... depending on what state services are available.



See, I didn't even know that. Granted my experience is only in California and MD as far as dealing with SSI and as far as I know neither of those states have the type of services you describe.

Although there are out reach programs, that some therapist office provide separately that act as your advocate and help with budgets, paper work, appointments, plugging you into programs, ect.




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RE: I'm going into the SSI office tomorow to ask about ... - 2/28/2013 7:07:41 PM   
servantforuse


Posts: 6363
Joined: 3/8/2006
Status: offline 		Additional services cost additional money. Now you have this and pretty soon you will have that. I am a little taken aback that this new thread only took a day or so. I would have bet it would be at least a week or so.

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RE: I'm going into the SSI office tomorow to ask about ... - 2/28/2013 7:11:56 PM   
TheLilSquaw


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From: Middle River, MD
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quote:

ORIGINAL: servantforuse

Additional services cost additional money. Now you have this and pretty soon you will have that. I am a little taken aback that this new thread only took a day or so. I would have bet it would be at least a week or so.



The shows how naive you are about these types of services.

There are programs out there MEANT to help people. Specifically people on SSI and or SSD.

Including the Ticket to Work Program, which is meant to help people on SSI and or SSD attempt to work with the proper supports.

I would also suggest that by someone being properly diagnosed, and using the proper resources in the long run their quality of life and the possibility of them being a productive part of society increases.

If TFB had an advocate or case manager looking out for HER best interest perhaps she would not get into half of the situations she does simply because she doesn't have support, ability and or the knowledge to do so on her own.





< Message edited by TheLilSquaw -- 2/28/2013 7:15:30 PM >

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RE: I'm going into the SSI office tomorow to ask about ... - 2/28/2013 7:16:07 PM   
servantforuse


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Status: offline 		This shows me how naive you are about her intention of ever working. She has never had a real job and as long as these services are in place she will never have to.

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RE: I'm going into the SSI office tomorow to ask about ... - 2/28/2013 7:18:19 PM   
TheLilSquaw


Posts: 2340
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From: Middle River, MD
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quote:

ORIGINAL: servantforuse

This shows me how naive you are about her intention of ever working. She has never had a real job and as long as these services are in place she will never have to.


I'm far from naive about TFB. Lol

You are right she hasn't worked but that is because she has been disabled since she was minor and hasn't had advocates or resources to GET an education yet a job before. Duh!


BTW... according to YOUR statement even if someone is disabled as and adult or children they should be tossed to the wolves and not be eligible for resources.






< Message edited by TheLilSquaw -- 2/28/2013 7:21:45 PM >

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RE: I'm going into the SSI office tomorow to ask about ... - 2/28/2013 7:21:09 PM   
poise


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quote:

ORIGINAL: servantforuse

This shows me how naive you are about her intention of ever working. She has never had a real job and as long as these services are in place she will never have to.

Do you see happiness in any of TFTB's posts here? I'm with you on feeling frustrated at times with her
never ending posts about supposed self improvement that never seem to pan out in the end, but it's
pretty far fetched to assume she is living happily ever after with the limited amount of funds she gets.

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RE: I'm going into the SSI office tomorow to ask about ... - 2/28/2013 7:24:19 PM   
servantforuse


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Status: offline 		There are many programs already in place that she could be taking advantage of to improve herself. She is not using them. What is the point of being diagnosed for even more health problems, real or imagined ? Will that get her into a better school/ govt. funded program.

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